Sophie Hill, MA, PhD, Coordinating Editor, Cochrane Consumers and Communication Review Group, Head, Centre for Health Communication and Participation, Australian Institute for Primary Care and Ageing, La Trobe University, Victoria, Australia

“Besides health professionals and users of health services, this book is an indispensable asset to healthcare librarians who endeavour to save the time of the reader by identifying systematic reviews and careful analysis of research studies on carefully selected themes. This Cochrane handbook will enrich the practice of all the partners in care and it needs to be widely available in clinicians’ practice rooms, college libraries and hospital wards.”  (European Journal for Person Centered Healthcare, 23 January 2013)“I highly recommend this book to anyone with an interest in patient and public involvement within any health-related discipline.“  (Royal College of Pathologists, 2012)

• List of contributors, vii Preface, ixAcknowledgements, xiiChapter 1 Does communication with consumers and carers need to improve? 1Megan Prictor and Sophie HillChapter 2 A new conceptual framework for advancing evidence-informed communication and participation, 12Sophie Hill and Mary DraperChapter 3 Interventions for communication and participation: their purpose and practice, 27Sophie Hill, Dianne B. Lowe and Rebecca E. RyanChapter 4 Identifying outcomes of importance to communication and participation, 40Sophie Hill, Dianne B. Lowe and Joanne E. McKenzieChapter 5 Communicating risk and risk statistics for preventing chronic disease, 54Sophie Hill, Adrian G.K. Edwards and Dianne B. LoweChapter 6 What does participation mean? Reshaping our understanding of the meaning of surgery, 67Sophie Hill and Jessica KaufmanChapter 7 Disclosure: a case study of communication about medically acquired risk for a rare disease, 82Rebecca E. Ryan, Jessica Kaufman and Sophie HillChapter 8 How I used a systematic review from The Cochrane Library, 94Helen Dilkes, Jessica Kaufman and Sophie HillChapter 9 Evidence and resources for systems decision-making: improving the experience of health and treatment, 105Dianne B. Lowe, Sophie Hill and Rebecca E. RyanChapter 10 Looking at online health information more critically, 115John Kis-RigoChapter 11 Learning to communicate, 125Megan Prictor, Simon Lewin, Brian McKinstry and Jessica KaufmanChapter 12 Getting the most out of research: using what we know, 143Dell Horey, Jessica Kaufman, Sophie HillChapter 13 Research agendas for knowledgeable patients, 151Ruth Stewart and Sandy OliverChapter 14 Managing multiple health problems: is there evidence to support consumer-focused communication and participation? 161Rebecca E. Ryan and Sophie HillChapter 15 Partners in care – an evidence-informed approach to improving communication with women in a hospital setting, 173Sophie Hill, Maureen Johnson and Mary DraperChapter 16 Building health-literate societies, 184Sophie Hill, Dianne B. Lowe, Chaojie Liu and Nancy SantessoChapter 17 Tools for building research capacity and knowledge transfer, 196Helen Dilkes, Jessica Kaufman and Sophie HillChapter 18 Emerging technologies for health communication, 208Yannis Pappas and Josip CarIndex 218

Sophie Hill, MA, PhD, Coordinating Editor, Cochrane Consumers and Communication Review Group, Head, Centre for Health Communication and Participation, Australian Institute for Primary Care and Ageing, La Trobe University, Victoria, Australia

“Besides health professionals and users of health services, this book is an indispensable asset to healthcare librarians who endeavour to save the time of the reader by identifying systematic reviews and careful analysis of research studies on carefully selected themes. This Cochrane handbook will enrich the practice of all the partners in care and it needs to be widely available in clinicians’ practice rooms, college libraries and hospital wards.”  (European Journal for Person Centered Healthcare, 23 January 2013)“I highly recommend this book to anyone with an interest in patient and public involvement within any health-related discipline.“  (Royal College of Pathologists, 2012)

• List of contributors, vii Preface, ixAcknowledgements, xiiChapter 1 Does communication with consumers and carers need to improve? 1Megan Prictor and Sophie HillChapter 2 A new conceptual framework for advancing evidence-informed communication and participation, 12Sophie Hill and Mary DraperChapter 3 Interventions for communication and participation: their purpose and practice, 27Sophie Hill, Dianne B. Lowe and Rebecca E. RyanChapter 4 Identifying outcomes of importance to communication and participation, 40Sophie Hill, Dianne B. Lowe and Joanne E. McKenzieChapter 5 Communicating risk and risk statistics for preventing chronic disease, 54Sophie Hill, Adrian G.K. Edwards and Dianne B. LoweChapter 6 What does participation mean? Reshaping our understanding of the meaning of surgery, 67Sophie Hill and Jessica KaufmanChapter 7 Disclosure: a case study of communication about medically acquired risk for a rare disease, 82Rebecca E. Ryan, Jessica Kaufman and Sophie HillChapter 8 How I used a systematic review from The Cochrane Library, 94Helen Dilkes, Jessica Kaufman and Sophie HillChapter 9 Evidence and resources for systems decision-making: improving the experience of health and treatment, 105Dianne B. Lowe, Sophie Hill and Rebecca E. RyanChapter 10 Looking at online health information more critically, 115John Kis-RigoChapter 11 Learning to communicate, 125Megan Prictor, Simon Lewin, Brian McKinstry and Jessica KaufmanChapter 12 Getting the most out of research: using what we know, 143Dell Horey, Jessica Kaufman, Sophie HillChapter 13 Research agendas for knowledgeable patients, 151Ruth Stewart and Sandy OliverChapter 14 Managing multiple health problems: is there evidence to support consumer-focused communication and participation? 161Rebecca E. Ryan and Sophie HillChapter 15 Partners in care – an evidence-informed approach to improving communication with women in a hospital setting, 173Sophie Hill, Maureen Johnson and Mary DraperChapter 16 Building health-literate societies, 184Sophie Hill, Dianne B. Lowe, Chaojie Liu and Nancy SantessoChapter 17 Tools for building research capacity and knowledge transfer, 196Helen Dilkes, Jessica Kaufman and Sophie HillChapter 18 Emerging technologies for health communication, 208Yannis Pappas and Josip CarIndex 218

Sophie Hill, MA, PhD, Coordinating Editor, Cochrane Consumers and Communication Review Group, Head, Centre for Health Communication and Participation, Australian Institute for Primary Care and Ageing, La Trobe University, Victoria, Australia

“Besides health professionals and users of health services, this book is an indispensable asset to healthcare librarians who endeavour to save the time of the reader by identifying systematic reviews and careful analysis of research studies on carefully selected themes. This Cochrane handbook will enrich the practice of all the partners in care and it needs to be widely available in clinicians’ practice rooms, college libraries and hospital wards.”  (European Journal for Person Centered Healthcare, 23 January 2013)“I highly recommend this book to anyone with an interest in patient and public involvement within any health-related discipline.“  (Royal College of Pathologists, 2012)

• List of contributors, vii Preface, ixAcknowledgements, xiiChapter 1 Does communication with consumers and carers need to improve? 1Megan Prictor and Sophie HillChapter 2 A new conceptual framework for advancing evidence-informed communication and participation, 12Sophie Hill and Mary DraperChapter 3 Interventions for communication and participation: their purpose and practice, 27Sophie Hill, Dianne B. Lowe and Rebecca E. RyanChapter 4 Identifying outcomes of importance to communication and participation, 40Sophie Hill, Dianne B. Lowe and Joanne E. McKenzieChapter 5 Communicating risk and risk statistics for preventing chronic disease, 54Sophie Hill, Adrian G.K. Edwards and Dianne B. LoweChapter 6 What does participation mean? Reshaping our understanding of the meaning of surgery, 67Sophie Hill and Jessica KaufmanChapter 7 Disclosure: a case study of communication about medically acquired risk for a rare disease, 82Rebecca E. Ryan, Jessica Kaufman and Sophie HillChapter 8 How I used a systematic review from The Cochrane Library, 94Helen Dilkes, Jessica Kaufman and Sophie HillChapter 9 Evidence and resources for systems decision-making: improving the experience of health and treatment, 105Dianne B. Lowe, Sophie Hill and Rebecca E. RyanChapter 10 Looking at online health information more critically, 115John Kis-RigoChapter 11 Learning to communicate, 125Megan Prictor, Simon Lewin, Brian McKinstry and Jessica KaufmanChapter 12 Getting the most out of research: using what we know, 143Dell Horey, Jessica Kaufman, Sophie HillChapter 13 Research agendas for knowledgeable patients, 151Ruth Stewart and Sandy OliverChapter 14 Managing multiple health problems: is there evidence to support consumer-focused communication and participation? 161Rebecca E. Ryan and Sophie HillChapter 15 Partners in care – an evidence-informed approach to improving communication with women in a hospital setting, 173Sophie Hill, Maureen Johnson and Mary DraperChapter 16 Building health-literate societies, 184Sophie Hill, Dianne B. Lowe, Chaojie Liu and Nancy SantessoChapter 17 Tools for building research capacity and knowledge transfer, 196Helen Dilkes, Jessica Kaufman and Sophie HillChapter 18 Emerging technologies for health communication, 208Yannis Pappas and Josip CarIndex 218