Allan Kellehear – författare

Death, dying, loss, and care giving are not just medical issues, but societal ones. Palliative care has become increasingly professionalised, focused around symptom science. With this emphasis on minimizing the harms of physical, psychological, and spiritual stress, there has been a loss of how cultures and communities look after their dying, with the wider social experience of death often sidelined in the professionalisation and medicalisation of care. However, the people we know and love in the places we know and love make up what matters most for those undergoing the experiences of death, loss, and care giving.Over the last 25 years the theory, practice, research evidence base, and clinical applications have developed, generating widespread adoption of the principles of public health approaches to palliative care. The essential principles of prevention, harm reduction, early intervention, and health and wellbeing promotion can be applied to the universal experience of end of life, irrespective of disease or diagnosis. Compassionate communities have become a routine part of the strategy and service development in palliative care, both within the UK and internationally. The Oxford Textbook of Public Health Palliative Care provides a reframing of palliative care, bringing together the full scope of theory, practice, and evidence into one volume. Written by international leaders in the field, it provides the first truly comprehensive and authoritative textbook on the subject that will help to further inform developments in this growing specialty.

This unique book recounts the experience of facing one's death solely from the dying person's point of view rather than from the perspective of caregivers, survivors, or rescuers. Such unmediated access challenges assumptions about the emotional and spiritual dimensions of dying, showing readers that-along with suffering, loss, anger, sadness, and fear-we can also feel courage, love, hope, reminiscence, transcendence, transformation, and even happiness as we die. A work that is at once psychological, sociological, and philosophical, this book brings together testimonies of those dying from terminal illness, old age, sudden injury or trauma, acts of war, and the consequences of natural disasters and terrorism. It also includes statements from individuals who are on death row, in death camps, or planning suicide. Each form of dying addressed highlights an important set of emotions and narratives that often eclipses stereotypical renderings of dying and reflects the numerous contexts in which this journey can occur outside of hospitals, nursing homes, and hospices.Chapters focus on common emotional themes linked to dying, expanding and challenging them through first-person accounts and analyses of relevant academic and clinical literature in psycho-oncology, palliative care, gerontology, military history, anthropology, sociology, cultural and religious studies, poetry, and fiction. The result is an all-encompassing investigation into an experience that will eventually include us all and is more surprising and profound than anyone can imagine.

This unique book recounts the experience of facing one's death solely from the dying person's point of view rather than from the perspective of caregivers, survivors, or rescuers. Such unmediated access challenges assumptions about the emotional and spiritual dimensions of dying, showing readers that-along with suffering, loss, anger, sadness, and fear-we can also feel courage, love, hope, reminiscence, transcendence, transformation, and even happiness as we die. A work that is at once psychological, sociological, and philosophical, this book brings together testimonies of those dying from terminal illness, old age, sudden injury or trauma, acts of war, and the consequences of natural disasters and terrorism. It also includes statements from individuals who are on death row, in death camps, or planning suicide. Each form of dying addressed highlights an important set of emotions and narratives that often eclipses stereotypical renderings of dying and reflects the numerous contexts in which this journey can occur outside of hospitals, nursing homes, and hospices.Chapters focus on common emotional themes linked to dying, expanding and challenging them through first-person accounts and analyses of relevant academic and clinical literature in psycho-oncology, palliative care, gerontology, military history, anthropology, sociology, cultural and religious studies, poetry, and fiction. The result is an all-encompassing investigation into an experience that will eventually include us all and is more surprising and profound than anyone can imagine.

About 30 percent of hospice patients report a “visitation” by someone who is not there, a phenomenon known in end-of-life care as a deathbed vision. These visions can be of dead friends or family members and occur on average three days before death. Strikingly, individuals from wildly diverse geographic regions and religions—from New York to Japan to Moldova to Papua New Guinea—report similar visions. Appearances of our dead during serious illness, crises, or bereavement are as old as the historical record. But in recent years, we have tended to explain them in either the fantastical terms of the supernatural or the reductive terms of neuroscience.This book is about how, when, and why our dead visit us. Allan Kellehear—a medical sociologist and expert on death, dying, and palliative care—has gathered data and conducted studies on these experiences across cultures. He also draws on the long-neglected work of early anthropologists who developed cultural explanations about why the dead visit. Deathbed visions conform to the rituals that underpin basic social relations and expectations—customs of greeting, support, exchange, gift-giving, and vigils—because the dead must communicate with us in a social language that we recognize. Kellehear emphasizes the personal consequences for those who encounter these visions, revealing their significance for how the dying person makes meaning of their experiences. Providing vital understanding of a widespread yet mysterious phenomenon, Visitors at the End of Life offers insights for palliative care professionals, researchers, and the bereaved.

About 30 percent of hospice patients report a “visitation” by someone who is not there, a phenomenon known in end-of-life care as a deathbed vision. These visions can be of dead friends or family members and occur on average three days before death. Strikingly, individuals from wildly diverse geographic regions and religions—from New York to Japan to Moldova to Papua New Guinea—report similar visions. Appearances of our dead during serious illness, crises, or bereavement are as old as the historical record. But in recent years, we have tended to explain them in either the fantastical terms of the supernatural or the reductive terms of neuroscience.This book is about how, when, and why our dead visit us. Allan Kellehear—a medical sociologist and expert on death, dying, and palliative care—has gathered data and conducted studies on these experiences across cultures. He also draws on the long-neglected work of early anthropologists who developed cultural explanations about why the dead visit. Deathbed visions conform to the rituals that underpin basic social relations and expectations—customs of greeting, support, exchange, gift-giving, and vigils—because the dead must communicate with us in a social language that we recognize. Kellehear emphasizes the personal consequences for those who encounter these visions, revealing their significance for how the dying person makes meaning of their experiences. Providing vital understanding of a widespread yet mysterious phenomenon, Visitors at the End of Life offers insights for palliative care professionals, researchers, and the bereaved.

The field of palliative care promises support for a dying person’s physical, psychological, social, and spiritual needs, as well as the needs of family and community. Has this powerful vision been achieved? This state-of-the-field book argues that palliative care has drifted away from its transformative goals—and shows what to do about it.Bringing together leading international scholars and practitioners, Well-Being at the End of Life demonstrates how contemporary palliative care has slowly but surely strayed from its original values and practices. The provision of palliative care now reflects institutional, medicalized, and health-service priorities. Increasingly, it has become solely clinical, confined and constrained by clinical service considerations and limitations. Those at the end of life are all too often viewed as patients to be treated instead of people with whom care providers must create collaboration, participation, and partnerships.Contributors call for a paradigm shift in the values and priorities of palliative care to emphasize the importance of community to personal well-being. Drawing on the concept of health promotion, they advance a shared vision that merges the principles of public health with those of palliative care. Reimagining the field to foreground compassion and interdependence, Well-Being at the End of Life offers a new approach that puts community and professional partnerships at the heart of its practice.

The field of palliative care promises support for a dying person’s physical, psychological, social, and spiritual needs, as well as the needs of family and community. Has this powerful vision been achieved? This state-of-the-field book argues that palliative care has drifted away from its transformative goals—and shows what to do about it.Bringing together leading international scholars and practitioners, Well-Being at the End of Life demonstrates how contemporary palliative care has slowly but surely strayed from its original values and practices. The provision of palliative care now reflects institutional, medicalized, and health-service priorities. Increasingly, it has become solely clinical, confined and constrained by clinical service considerations and limitations. Those at the end of life are all too often viewed as patients to be treated instead of people with whom care providers must create collaboration, participation, and partnerships.Contributors call for a paradigm shift in the values and priorities of palliative care to emphasize the importance of community to personal well-being. Drawing on the concept of health promotion, they advance a shared vision that merges the principles of public health with those of palliative care. Reimagining the field to foreground compassion and interdependence, Well-Being at the End of Life offers a new approach that puts community and professional partnerships at the heart of its practice.

In a strategy deliberately counter to many earlier texts which focus on social aspects of death and dying this book will not examine death through the social prism of US or British culture alone. Drawing only on material from a single society gives readers the misleading impression of a universal experience. As a text in the sociology of death and dying this volume examines culture-specific images and experiences of death in three major western societies - Australia, Britain and the USA.

What does graffiti reveal about social behaviour?Where can you find out about Australian social values without doing your own survey?There is more to social research than surveys and in-depth interviews. The Unobtrusive Researcher looks beyond the limited accounts people provide of themselves to examine society at a deeper level.Written in a clear, easy to read style, The Unobtrusive Researcher is a practical guide to a range of methods that can supplement and, at times, even replace conventional social research. It is essential reading for new and experienced researchers in the Social Sciences, Education, Communication Studies and Cultural Studies.Methods discussed include:library and archival workaudiovisual sourcesobservation techniquesmaterial culturethe use of cameras and computers'Witty, clear and concise.a remarkable overview of the field.' - Professor Bryan Turner, Deakin University'One of the few guides to research methods which takes on board the implications of poststructuralist theory for research, The Unobtrusive Researcher will be useful both for practising researchers wanting to broaden and update their approaches, and those at the very beginning of learning how to do research.' - Professor Ann Curthoys, University of Technology, Sydney

A high level research text for advanced undergraduate and post-graduate researchers in the health professions. Specific examples of research are used to explore a variety of approaches and possible ensuing problems. Fields covered include research in multidisciplinary teams, epidemiological research in an industrial setting and ethical dilemmas in studying other cultures. This book should be of interest to postgraduate researchers in the health professions, including nursing and medicine, physiotherapy, midwifery and occupational therapy.

Once it was difficult to see end of life care beyond conventional medical intervention, but hospice and palliative care introduced a more holistic approach, providing quality of life for the dying and their families. This ground-breaking work takes end-of-life care beyond these palliative boundaries, describing a public health vision that involves whole communities adopting a compassionate approach to dying, death and loss. Written by a leading academic in the field of death and bereavement, this text outlines the historical, political and conceptual basis of compassionate cities, providing a community development model for end-of-life care.Moving away from infection control and health promotion Allan Kellehear invites us to think of a third wave movement of public health, joining empathy, equality and action together as practical policies. Presenting a radical new perspective to death, ageing and public health, Compassionate Cities is essential reading for academics and professionals alike.

Once it was difficult to see end of life care beyond conventional medical intervention, but hospice and palliative care introduced a more holistic approach, providing quality of life for the dying and their families. This ground-breaking work takes end-of-life care beyond these palliative boundaries, describing a public health vision that involves whole communities adopting a compassionate approach to dying, death and loss. Written by a leading academic in the field of death and bereavement, this text outlines the historical, political and conceptual basis of compassionate cities, providing a community development model for end-of-life care.Moving away from infection control and health promotion Allan Kellehear invites us to think of a third wave movement of public health, joining empathy, equality and action together as practical policies. Presenting a radical new perspective to death, ageing and public health, Compassionate Cities is essential reading for academics and professionals alike.

Public health approaches to palliative care have been growing in policy importance and practice acceptance. This innovative volume explores the major concepts, practice examples, and practice guidelines for this new approach.The goal of ‘comprehensive care’ – seamless support for patients as they transition between home based care and inpatient services – relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing contexts, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview whilst offering practical case examples from affluent and developing contexts, in a range of clinical settings. Finally, it draws together research-based guidelines for future practice. Essential reading for public health researchers and practitioners with an interest in end of life care and global health as well as those involved in developing palliative care provision, International Perspectives on Public Health and Palliative Care is the first volume to present an overview of theory and practice in this emerging field.

The 40 short reflections in this book address the ways in which we face the prospect of death and loss. The first 20 reflections are designed to be read by (or to) anyone living with a life-threatening illness; the other 20 are reflections on living with grief, especially bereavement. Each reflection is based on a single story drawn from one of three sources: Dr. Kellehear's professional experience with individuals living with dying or loss; his own experiences and stories from childhood; and the retelling of some of the great myths and legends about life, love, and death, selected from around the world-from Ireland to Japan, from Melanesia to China. The book is written to be accessible to a wide general audience.It can be read from beginning to end like a conventional book; each self-contained piece is also suitable for reading on a bus, train, or plane journey, or before bed at night. Each piece can be selected as a stand-alone meditation for use as a discussion topic in pastoral care, counseling, or sermons. These reflections are stories about how we can make the most of life in the shadow of death and loss. They are designed to instill hope and meaning in the difficult times that can accompany human mortality.

Public health approaches to palliative care have been growing in policy importance and practice acceptance. This innovative volume explores the major concepts, practice examples, and practice guidelines for this new approach.The goal of ‘comprehensive care’ – seamless support for patients as they transition between home based care and inpatient services – relies on the principles of health promotion and community development both to ensure services are available and importantly appropriate for patients’ needs. In developing contexts, where hospitals and hospices may be inaccessible, a public health approach provides not only continuity of care but greater access to good end of life care. This book provides both a historical and conceptual overview whilst offering practical case examples from affluent and developing contexts, in a range of clinical settings. Finally, it draws together research-based guidelines for future practice. Essential reading for public health researchers and practitioners with an interest in end of life care and global health as well as those involved in developing palliative care provision, International Perspectives on Public Health and Palliative Care is the first volume to present an overview of theory and practice in this emerging field.

What is it really like to die? Though our understanding about the biology of dying is complex and incomplete, greater complexity and diversity can be found in the study of what human beings encounter socially, psychologically and spiritually during the experience. Contributors from disciplines as diverse as social and behavioural studies, medicine, demography, history, philosophy, art, literature, popular culture and religion examine the process of dying through the lens of both animal and human studies. Despite common fears to the contrary, dying is not simply an awful journey of illness and decline; cultural influences, social circumstances, personal choice and the search for meaning are all crucial in shaping personal experiences. This intriguing volume will be of interest to clinicians, professionals, academics and students of death, dying and end-of-life care, and anyone curious about the human confrontation with mortality.

Our experiences of dying have been shaped by ancient ideas about death and social responsibility at the end of life. From Stone Age ideas about dying as otherworld journey to the contemporary Cosmopolitan Age of dying in nursing homes, Allan Kellehear takes the reader on a 2 million year journey of discovery that covers the major challenges we will all eventually face: anticipating, preparing, taming and timing for our eventual deaths. This book, first published in 2007, is a major review of the human and clinical sciences literature about human dying conduct. The historical approach of this book places our recent images of cancer dying and medical care in broader historical, epidemiological and global context. Professor Kellehear argues that we are witnessing a rise in shameful forms of dying. It is not cancer, heart disease or medical science that presents modern dying conduct with its greatest moral tests, but rather poverty, ageing and social exclusion.

What is it really like to die? Though our understanding about the biology of dying is complex and incomplete, greater complexity and diversity can be found in the study of what human beings encounter socially, psychologically and spiritually during the experience. Contributors from disciplines as diverse as social and behavioural studies, medicine, demography, history, philosophy, art, literature, popular culture and religion examine the process of dying through the lens of both animal and human studies. Despite common fears to the contrary, dying is not simply an awful journey of illness and decline; cultural influences, social circumstances, personal choice and the search for meaning are all crucial in shaping personal experiences. This intriguing volume will be of interest to clinicians, professionals, academics and students of death, dying and end-of-life care, and anyone curious about the human confrontation with mortality.

The 40 short reflections in this book address the ways in which we face the prospect of death and loss. The first 20 reflections are designed to be read by (or to) anyone living with a life-threatening illness; the other 20 are reflections on living with grief, especially bereavement. Each reflection is based on a single story drawn from one of three sources: Dr. Kellehear's professional experience with individuals living with dying or loss; his own experiences and stories from childhood; and the retelling of some of the great myths and legends about life, love, and death, selected from around the world-from Ireland to Japan, from Melanesia to China. The book is written to be accessible to a wide general audience.It can be read from beginning to end like a conventional book; each self-contained piece is also suitable for reading on a bus, train, or plane journey, or before bed at night. Each piece can be selected as a stand-alone meditation for use as a discussion topic in pastoral care, counseling, or sermons. These reflections are stories about how we can make the most of life in the shadow of death and loss. They are designed to instill hope and meaning in the difficult times that can accompany human mortality.

Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones. Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.

This practical guide summarizes the principles of working with dying patients and their families as influenced by the commoner world religions and secular philosophies. It also outlines the main legal requirements to be followed by those who care for the dying following the death of the patient.The first part of the book provides a reflective introduction to the general influences of world religions on matters to do with dying, death and grief. It considers the sometimes conflicting relationships between ethics, religion, culture and personal philosophies and how these differences impact on individual cases of dying, death and loss. The second part describes the general customs and beliefs of the major religions that are encountered in hospitals, hospices, care homes and home care settings. It also includes discussion of non-religious spirituality, humanism, agnosticism and atheism. The final part outlines key socio-legal aspects of death across the UK.Death, Religion and Law provides key knowledge, discussion and reflection for dealing with the diversity of the everyday care of dying and death in different religious, secular and cultural contexts. It is an important reference for practitioners working with dying patients, their families and the bereaved.

This practical guide summarizes the principles of working with dying patients and their families as influenced by the commoner world religions and secular philosophies. It also outlines the main legal requirements to be followed by those who care for the dying following the death of the patient.The first part of the book provides a reflective introduction to the general influences of world religions on matters to do with dying, death and grief. It considers the sometimes conflicting relationships between ethics, religion, culture and personal philosophies and how these differences impact on individual cases of dying, death and loss. The second part describes the general customs and beliefs of the major religions that are encountered in hospitals, hospices, care homes and home care settings. It also includes discussion of non-religious spirituality, humanism, agnosticism and atheism. The final part outlines key socio-legal aspects of death across the UK.Death, Religion and Law provides key knowledge, discussion and reflection for dealing with the diversity of the everyday care of dying and death in different religious, secular and cultural contexts. It is an important reference for practitioners working with dying patients, their families and the bereaved.

Compassionate communities are communities that provide assistance for those in need of end of life care, separate from any official heath service provision that may already be available within the community. This idea was developed in 2005 in Allan Kellehear’s seminal volume- Compassionate Cities: Public Health and End of Life Care. In the ensuing ten years the theoretical aspects of the idea have been continually explored, primarily rehearsing academic concerns rather than practical ones.Compassionate Communities: Case Studies from Britain and Europe provides the first major volume describing and examining compassionate community experiments in end of life care from a highly practical perspective. Focusing on community development initiatives and practice challenges, the book offers practitioners and policy makers from the health and social care sectors practical discussions on the strengths and limitations of such initiatives. Furthermore, not limited to providing practice choices the book also offers an important and timely impetus for other practitioners and policy makers to begin thinking about developing their own possible compassionate communities. An essential read for academic, practitioner, and policy audiences in the fields of public health, community development, health social sciences, aged care, bereavement care, and hospice & palliative care, Compassionate Communities is one of only a handful of available books on end of life care that takes a strong health promotion and community development approach.

In a strategy deliberately counter to many earlier texts which focus on social aspects of death and dying this book will not examine death through the social prism of US or British culture alone.