Gabriel M. Ronen - Böcker

Clinics in Developmental Medicine Health care professionals need to understand their patients’ views of their condition and its effects on their health and well-being. This book builds on the World Health Organization's concepts of 'health', 'functioning' and 'quality of life' for young people with neurodisabilities: it emphasises the importance of engaging with patients in the identification of both treatment goals and their evaluation. Uniquely, it enables health care professionals to find critically reviewed outcomes-related information. The authors are leaders in their respective research fields and discuss theory, concepts, and evidence, and how these are applied in clinical settings and research applications.Readership: Health care professionals working with children and youth with neurological and developmental conditions, wanting to expand their clinical or research horizons.Frontline service providers, health services and social science researchers, clinical program managers and policy makers concerned with ensuring that their clinical or programmatic services are addressing contemporary issues as effectively as possible.Students in the health professions and others in related fields (such as social work).

Have you ever Wondered how to deal with a family that repeatedly fails to keep clinic appointments?Disagreed with colleagues over a proposed course of treatment for a child?Considered ways to 'bump' a child on a waiting to speed up their assessment?These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful "Themes for Discussion" are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.

From time to time in the field of healthcare, an exciting new development emerges to challenge and potentially transform thinking and behaviour. The International Classification of Functioning, Disability and Health (ICF) and its framework is undoubtedly one of these transformative resources and is increasingly widely used in the field of childhood disability.This accessible handbook introduces the ICF to professionals working with children with disabilities and their families. It contains an overview of the elements of the ICF but focusses on practical applications, including how the ICF framework can be used with children, families and carers to formulate health and management goals. The Appendices contain case studies for individuals and interdisciplinary teams to work through and discuss, alongside other resources, and a copy of an ICF code set for children and youth is available to download online.Importantly, the book includes a chapter written by a parent of a child with impairments, illustrating the potential diverse applications of the ICF framework. The ICF’s relationship with patient-reported outcome measures (PROMs) and future alternatives to the current ICF framework are also examined.Clinicians, paediatricians and other healthcare providers in neurodisability, community-based health professionals, policy makers and the families and carers of children with disabilities will find this title an indispensable resource.