Jo Howard – författare

Sickle Cell Disease is the most common genetic disease world wide and in the UK. Sickle Cell Disease can be associated with acute life threatening complications, when clear, easily available advice is needed, and with chronic long term complications which may need liaison with other health professionals.

This SAGE Handbook presents contemporary, cutting-edge approaches to participatory research and inquiry. It has been designed for the community of researchers, professionals and activists engaged in interventions and action for social transformation, and for readers interested in understanding the state of the art in this domain. The Handbook offers an overview of different influences on participatory research, explores in detail how to address critical issues and design effective participatory research processes, and provides detailed accounts of how to use a wide range of participatory research methods. Chapters cover pioneering new participatory research techniques  including methods that can be operationalised at scale, approaches to engaging the poorest and most marginalised, and ways of harnessing technologies to increase the scope of participation, amongst others. Drawing upon a wide range of disciplines, and bringing together contributing authors from across the globe, this Handbook will be of interest to an international readership from across the broad spectrum of social sciences, including social policy, development studies, geography, sociology, criminology, political science, health and social care, education, psychology, business & management. It will also be an insightful and practical resource for facilitators, community workers, and activists for social change. Part 1: Introduction Part 2: Key Influences and Foundations of Participatory Research Part 3: Critical Issues in the Practice of Participatory Research Part 4: Methods and Tools Part 4.1: Dialogic and Deliberative Processes Part 4.2: Digital Technologies in Participatory Research Part 4.3: Participatory Forms of Action Orientated Research Part 4.4: Visual and Performative Methods  Part 4.5: Participatory Monitoring, Evaluation and Learning  Part 4.6: Mixing and Mashing Participatory and Formal Research Part 5: Final Reflections

EPDF and EPUB available Open Access under CC-BY-NC-ND licence.Examining countries where religious pluralism is in decline, including Iraq, India, Pakistan and Nigeria, this book brings together reflections, knowledge and learning about the daily experiences of religiously marginalized groups, generated using participatory research methods. It also showcases the participatory methodologies implemented by its international team of contributors and highlights the importance of using non-extractive methods for engaging with participants. Including a careful consideration of the ethics and limitations of participatory research with marginalized groups, the book reflects on the implications for people’s agency when research creates space for them to reflect on their realities in a group setting and uses methods which put their own experience and analysis at the centre of the process.