University of Bradford Dementia Good Practice Guides – serie

Over 25,000 older people from minority ethnic backgrounds live with dementia in the UK. Research suggests that these communities often face inequalities across the dementia care pathway and often don't receive/access support until crisis point. Our modern society is wonderfully diverse with a range of cultures and ethnicities, with their own traditions, languages, and religions.When dealing with the challenges of dementia, individuals, their families, and communities from minority ethnic backgrounds-must be provided with appropriate advice, care, and support. Drawing on the evidence base, as well as personal and professional experience, chapters cover stigma surrounding the disease, promoting dementia awareness, risk factors for developing dementia, and much more. With an account of key issues and needs for people from minority ethnic communities at each stage of life with dementia, readers are given practical examples of culturally sensitive support, services, and interventions.

Sensory loss and dementia often co-exist. When this happens, people may face a complex cross-over of symptoms, presenting the challenge of how to manage multiple conditions and provide support to minimise the effect on day-to-day life.In each chapter, this question is addressed through topics such as tests, treatments, communication support strategies, adapting living spaces, assistive devices and more. How symptoms of sensory loss can be mistaken for the effects of dementia is revealed, and strategies for successful assessment are provided. By incorporating the voices of people with lived experience of visual and hearing loss in combination with dementia, and their families, you are equipped with the knowledge to provide person-centred support.

Human rights are a key issue for all healthcare and social care practitioners, and almost every aspect of dementia care has a human rights dimension. How can we balance the individual's right for dignity, autonomy and privacy against the backdrop of time constraints, duty of care and limited resources? Can a person with dementia be supported to participate in decision making? Is assistive technology always empowering? What must it feel like to be denied a dementia- specific service because of one's age? This practice guide addresses these along with other critical questions, helping you to better understand the diverse and often complex dimensions of dementia caregiving. It provides a new framework to enable you to apply a human rights approach to real life situations, placing the person with dementia at the centre stage and keeping their dignity, independence, sense of purpose and quality of life at the fore. The book builds on person-centred principles, uses case studies to demonstrate theory and provides new analytical tools to support all those committed to best practice in dementia care.

Bringing together research, policy and the voices of LGBTQ+ people with dementia, this good practice guide highlights the importance of a person-centred approach.Care and support should recognise and validate different - and often intersectional - LGBTQ+ identities. Readers are encouraged to move away from the idea of equality as treating everyone the same, towards treating everyone as individuals.The vast changes in the social and legal status of LGBTQ+ people through recent decades can uniquely affect their later lives. Dementia services are often under-prepared to meet their needs, and there can be prejudice and discrimination. Creating LGBTQ+ inclusive services can be challenging. The book explains how to deal with these challenges, giving lots of practical examples. 'Food for thought' sections offer opportunities for reflection.Becoming more informed about LGBTQ+ lives and creating services which are LGBTQ+ inclusive will improve the experiences of LGBTQ+ people living with dementia and encourage the best possible quality care.

The QCS Pool Activity Level (PAL) Instrument is widely used as the framework for providing activity-based care for people with cognitive impairments, including dementia. The Instrument was recommended for daily living skills training and activity planning in the National Institute for Clinical Excellence Clinical Guidelines for Dementia (NICE 2006). It is an essential resource for any practitioner or carer wanting to provide fulfilling occupation for clients with cognitive impairments.This fifth edition of The QCS Pool Activity Level (PAL) Instrument for Occupational Profiling retains the checklists and plans helpful in matching user's abilities with personal care and leisure activities and includes a new chapter co-written by Professor Lesley Collier on the revised 'PAL Engagement Measure' describing its use and validity. Including access to a digital version of the PAL instrument, it is an essential resource for any practitioner or carer wanting to provide fulfilling and meaningful occupation for clients with cognitive impairments.

Offering practical advice for arts therapists and health care professionals, this book emphasizes the importance of putting the individual before the illness to provide holistic, person-centred support for people with dementia.The contributors are all practising healing arts therapists who show how music, dance and the visual arts can be used in partnership with person-centred care to promote improved memory, reduced anxiety, increased self-esteem, better communication and successful group interaction. They use case studies to demonstrate the ways in which therapists can encourage engagement of those with dementia with sound, touch, movement and visual forms, making this a positive and practical book for all those working to provide person-centred dementia

Families often wrestle with the decision to move a person with dementia into a care home. The decision can be highly charged and emotional, involving feelings of loss, sadness and guilt. Moreover, developing a good relationship between the family and the care home is not an easy matter.In this accessible guide the authors take person-centred dementia care a step forward by outlining ways in which care homes can help families to become partners in the caring process. Using case examples, quotations and research-based evidence, the authors offer practical advice and good practice guidelines for supporting relatives who choose to be involved in the care of people with dementia living in a care home, as well as highlighting the value of this involvement. The book is written in an easy-to-read style and incorporates useful features such as checklists for reviewing current practices and summaries of key points for each chapter.An invaluable resource for care home managers and staff, this book will also be helpful for families of people with dementia, as well as for students and researchers interested in dementia care practice.

Bradford Dementia Group Good Practice GuidesThere are always difficult day to day decisions to be faced when caring for a person with dementia - from knowing how to deal with wandering to end of life decisions. Many of these decisions are underpinned by value judgments about right and wrong and reflect a particular view of dementia. This book considers these ethical decisions in the context of relationships, treatment, safety and quality of life, offering practical guidance and advice. It draws on the experiences of family carers as well as on existing research and emphasizes the importance of empathy and the need to acknowledge different perspectives in order to reach the best decision for the person with dementia. In particular the authors discuss the way that decision makers are themselves changed by the decisions they make, and the impact of this on the decision-making process. This book should be read by all those who work caring for people with dementia.

The correlation between 'disengagement' and illness in people with dementia living in long-term care settings is becoming more widely recognised, and developing and adapting front-line staff responses to the changing needs of individuals is a crucial factor in addressing this problem.This book presents a complete practical framework for whole person assessment, care planning and review of persons with dementia or signs of dementia (including those with learning disabilities) who are in need of, or already receiving, health and/or social support. The book provides photocopiable assessment forms, guidelines for carrying out the assessment, and suggestions for tailored interventions based on the profile that emerges from the assessment process. The authors also include a clear explanation of the five theoretical components of dementia that are considered in the assessment: health, biography, personality, neurological impairment and social psychology. This good practice guide will provide a step up to the challenge of providing person centred care as a minimum standard rather than just an ideal.Care workers in residential settings and social workers assessing clients for their support requirements will find this an essential resource.

Maintaining a connection to nature is increasingly recognised as an important component of caring for a person with dementia. Design for Nature in Dementia Care provides comprehensive examples of ways to connect to nature through indoor and outdoor activities.The author describes a wide range of activities that offer a connection to nature, such as caring for house plants and pets, gardening and cooking, practising handicrafts and domestic chores. He suggests practical ways to incorporate nature into indoor and outdoor environments and also into the design of buildings and landscapes. These suggestions are drawn from interdisciplinary research in environmental psychology, neurology, architecture, nursing and dementia care practice.This book is a practical resource for care providers and design professionals who want to use nature to improve the lives of people with dementia.

Reminiscence is a vital way to stimulate communication and promote confidence and self-worth in people with dementia. This practical guide is designed to give those who care for people with dementia a clear sense of how reminiscence can be used to greatly improve their quality of life.The book explores how reminiscence can contribute to person-centred dementia care and contains detailed descriptions of activities that can be used in a group setting, for one-to-one reminiscence at home or in a variety of care settings. Based on ideas developed and tested internationally over a period of ten years, the book offers imaginative approaches to reminiscence and a wealth of resources for use in a wide range of situations. The book includes advice on organising a reminiscence project and provides a useful planning tool for group sessions.Remembering Yesterday, Caring Today highlights the value of reminiscence for those with dementia and is an essential guide to good practice for family and professional carers.

Following admission to a care home, family and friends may feel uncertain as to how they now 'fit in' to their loved one's life. This training package, comprising a booklet and DVD, is designed to encourage family participation in the care home and develop a constructive partnership between staff in care homes, families and people with dementia.The DVD and booklet provide material for four separate training sessions for use by mixed groups of relatives and care home staff. Each session explores a different theme: sharing information, sharing the care, developing supportive relationships and making it work. With a clear and flexible layout, group exercises and notes for the facilitator, this training package will enable professionals and relatives to develop positive and fulfilling ways of working together and improve the level of care for those with dementia.This practical training package complements the book Involving Families in Care Homes: A Relationship-Centred Approach to Dementia Care (Woods, Keady & Seddon) and will be an essential resource for improving relationships between care home professionals, family members and residents with dementia.

*Winner in the Health and Social Care category at the 2012 British Medical Association Book Awards*Risk is central to professional practice, assessment and decision-making in dementia care. Yet theories of risk are often complex and difficult to translate into everyday practice. This book outlines some of the key issues in risk perception, assessment and management in dementia care in a way that is both practical and accessible to a wide range of practitioners. It develops an approach to risk that promotes choice for people with dementia whilst also acknowledging the complex challenges care providers face. The authors provide an overview of the legislative framework currently in place, and of the ethical dilemmas which may emerge in practice. Frameworks for informed and balanced decision-making are offered, and the importance of including the person with dementia, their family, and care providers in decision-making is emphasised. Throughout the book, case studies are used to illustrate effective negotiation and practical solutions to risk dilemmas in practice. This book highlights principles of good practice for managing risk in dementia care, and presents a rounded approach that will help practitioners negotiate some of the complex issues this entails.

People with dementia need increasingly specialised support as they approach the end of life, and so too do their families and the professionals working with them. This book describes not only what can be done to ensure maximum quality of life for those in the final stages of the illness, but also how best to support those involved in caring for them.Emphasising the importance of being attuned to the experiences and needs of the person with dementia, the authors explain why and how they should be included in decisions relating to their end of life care. Practical strategies for ensuring physical and emotional wellbeing are provided, drawing on useful examples from practice and providing solutions to potential challenges that carers and family members will face. Dilemmas surrounding end of life care are explored in detail, including the moral dilemma of medical intervention, and the authors suggest ways of supporting family members through the process in terms of providing information, helping them adjust to change and loss, and involving them in their relative's care, and at how care staff can be supported through appropriate education and training, team building and information-giving.This is an essential resource for anyone who wishes to provide compassionate, person-centred care for a person with dementia as they approach the end of life, including care staff, nurses, social workers and related professionals.

Establishing playfulness as an essential component of dementia care, this positive and uplifting book will be key in changing attitudes and providing ideas for new and valuable ways of interacting and being with individuals with the condition. John Killick explores the nature of playfulness and the many ways in which it can enrich the lives of people with dementia, including as a means of maintaining relationships and communication, supporting communication and generally lifting the spirits. Specific approaches already in existence are described, including improvised drama, clowning and laughter yoga, and a chapter on the playful approach to art and craft activities is also included. Personal accounts of playfulness by individuals with dementia, relatives and an actor with a decade's experience of using playful approaches with people with dementia offer rich first-hand insights into its transformative potential. Throughout the book, the importance of spontaneity and of being with the person with dementia in the present moment is emphasised, and the reader is encouraged to develop a playful mindset. A selection of colour photographs amply demonstrate playful approaches in action. Offering a fresh and perhaps unexpected perspective, this book is essential reading for dementia care practitioners and managers, activity coordinators, therapists, people with dementia and their relatives, and anyone else concerned with the wellbeing of those with the condition.

Person-centred dementia care relies on leadership that supports the ongoing process of learning about and valuing individuals, their feelings, strengths and needs, and using this knowledge to enhance wellbeing and create a positive care environment. With a strong practical focus and many helpful case examples, this book will equip readers with the practical skills, knowledge and confidence necessary to lead person-centred dementia care. The areas explored are relevant across a wide range of care settings, and to all those in, or starting, either a managerial or non-managerial leadership role within a dementia care service. Topics covered include the key goals for person-centred dementia care, and the type of leadership approach most likely to bring them to fruition; common barriers to person-centred dementia care, and how leaders can identify and combat them; how to nurture, support and empower staff; how to maximise the effectiveness of verbal and written communications; and how as a leader to respond to challenging situations and risk. This accessible book is essential reading for all those with a formal or informal leadership role within a dementia care service, including managers, deputy managers, team leaders, service managers and experienced care staff involved in leading or mentoring others.

The award-winning PEARL (Positively Enriching and enhancing Residents' Lives) programme was developed to enable care homes to move from providing good fundamental care to excellent person-centred dementia care. Trialled extensively by one of the UK's largest care providers, it has been proven to dramatically increase the quality of life of people with dementia living in care homes, significantly reducing the use of antipsychotics and the incidence of stress-related behaviours. This concise and accessible guide, written by the Director of Dementia Care at the care provider which trialled and developed PEARL, describes the key criteria of the programme, and provides best practice guidelines for dementia care practitioners wishing to use the approach in their own care home. With an emphasis on the practical, achievable elements of the programme, and drawing on many useful examples, the author and contributors provide guidelines on, amongst many things, getting the fundamentals of person-centred care right; enabling decision-making; reducing stress-related behaviours; psychosocial treatments; safeguarding; supporting staff; and involving relatives.

Using the latest ideas on good practice from the Bradford Dementia Group, Anthea Innes provides a complete and concise guide to running a training programme for dementia care workers. She begins with a brief outline of the key factors to consider prior to the design, delivery and implementation of a programme. In particular the book stresses the importance of getting to know the care setting in which the trainees will practise, to ensure that the training has direct relevance to participants.The author then discusses the theoretical and practical issues involved in designing the training programme, including advice on how best to tailor it to the audience, and highlighting the practical points a trainer needs to consider when delivering a programme. She considers the problems that arise when attempting to convert theory into practice, as well as factors that can help training be relevant and acted upon. The book concludes with a discussion about the best means of evaluating a training programme and its impact on practice.

A practical resource written specifically for social care professionals working with people with dementia and their families, this book gives guidance on person-centred good practice throughout the care process from the initial diagnosis, through day care, respite care, long-term care, and death and attachment.The guide will enable social workers to manage their cases effectively and empathetically, making appropriate, culturally sensitive decisions and acting as advocates for this growing client group. It contains essential background material about the financial and legal context, including an explanation of the relevance of the Mental Health Act 1983. The author locates weak points in current provision and makes practical suggestions for future developments. Social Work and Dementia will enable social services to meet the needs of older clients experiencing dementia, and to understand, apply and contribute to new developments in their care.