Supportive care for the person with dementia

Dr Julian C Hughes read Philosophy, Politics and Economics at Oxford prior to studying medicine in Bristol. He then served in the Royal Air Force, but completed his higher training in psychiatry in Oxford and, at the same time, undertook a PhD in Philosophy at Warwick. Since taking up consultant posts, first in Newcastle, and subsequently in North Tyneside, he has pursued his academic interest in ethics and philosophy in connection with ageing and dementia. This has led to a particular interest in palliative care in dementia. He was an advisor on ethics and palliative care to the NICE-SCIE Guideline on Dementia, which reported in 2006, and a member of the Dementia Working Party of the Nuffield Council on Bioethics, which reported in 2009.Professor Mari Lloyd-Williams qualified from Leicester University medical school and following posts in oncology, general medicine, psychiatry and primary care completed her higher training in palliative medicine at University of Leicester Hospitals and LOROS Hospice and was appointed Consultant and Honorary Senior Lecturer to the University of Leicester Hospitals Trust and LOROS Hospice in 2000. In 2002 she was appointed as Senior Lecturer at the University of Liverpool and in 2003 was promoted to a personal chair within the School of Population, Community and Behaviour in recognition of her research experience and portfolio. She has published over 100 papers and the acclaimed book " Psychosocial Issues in Palliative Care " has recently appeared in a second edition and she lectures both nationally and internationally.Dr. Sachs received his B.A. from the University of Chicago in 1981 and his MD from Yale University in 1985. He trained in internal medicine at the University of Chicago, staying on to complete a combined three-year geriatrics and clinical ethics fellowship under the mentorship of Dr. Christine Cassel. Dr. Sachs joined the University of Chicago faculty in 1990 and became the founding Chief of the new Section of Geriatrics there in 2000, serving in that role until his move to IU in the summer of 2007.

If your work involves significant numbers of people with dementia then this book, which is clinically very practical, will provide you with support and a lot to reflect upon as to how the care you deliver might be improved.

• 1. Characterizing care ; 2. An introduction to the dementias: a clinical view ; 3. The view of the person with dementia ; 4. The view of the family carer ; 5. Offering supportive care in dementia: reflections on the PEACE programme ; 6. Services for younger adults with dementia ; 7. Huntington's disease and dementia ; 8. Patients with HIV-associated dementia ; 9. Down's syndrome and dementia: a framework for practice to support people with Down's syndrome and dementia living in generic care homes ; 10. Dementia care in developing countries ; 11. Ingredients and issues in supportive care for people with dementia: summarizing from models of care ; 12. Pharmacological management of neuropsychiatric symptoms in people with dementia ; 13. Hospital admissions in dementia ; 14. Distress and pain in dementia ; 15. The role of the family doctor in supportive care for people with dementia ; 16. Community mental health nursing and supportive care ; 17. From psychological interventions to a psychology of dementia ; 18. Supportive care: social care and social work approaches ; 19. Care homes and long-term care for people with dementia ; 20. Assisted living programmes providing supportive care for dementia ; 21. Spiritual care of people with dementia and their carers ; 22. Anticipatory and disenfranchised grief among dementia family caregivers: helping spouse and adult/child caregivers to cope ; 23. Communicating with people with dementia ; 24. Maintaining the self in dementia ; 25. Person-centred care as supportive care ; 26. Narrative, supportive care, and dementia: a preliminary exploration ; 27. Persons with severe dementia and the notion of bodily autonomy ; 28. Advance care planning: an American view ; 29. Advance care planning and palliative care in dementia: a view from the Netherlands ; 30. Living and dying at home with dementia ; 31. Namaste care and dying in institutional settings ; 32. The principles and practice of supportive care in dementia