From the creator of Finding Cooper’s Voice and one of today’s leading autism advocates comes an essential guide for caregivers—written with the authority and honesty of a parent who has lived it Caring for a child with autism can be filled with love and purpose—but also isolation, exhaustion, and the fear that no one truly sees how hard it is. In this heartfelt and practical guide, Kate Swenson offers invaluable firsthand perspective and concrete advice for the challenges many caregivers are left to face on their own. Drawing on research, advocacy, and her lived experience as the mother of an autistic son, Swenson tackles the question so many caregivers ask: How do I care for my child without losing myself? With honesty and compassion, she helps readers navigate the emotional realities of caregiving while providing tools to help process your emotions, prepare for the future, and take meaningful steps forward. Inside these pages, you will find guidance and reflection around some of the biggest parts of caregiving, including: Understanding and navigating diagnosis Finding, obtaining, and maintaining services and supports Advocating for your child Processing emotions and prioritizing your own well-being Building a sustainable and joyful life for your family Planning for your child’s future financially Obtaining guardianship, housing, and independence for your child With clear advice and hard-won wisdom, Raising Autism demystifies the complexities of caregiving and offers support, guidance and a place to begin. The autism journey may not always be easy, but you do not have to walk it alone.
