Dying and Disabled Children

Harold M. Dick, David Price Roye, Jr., Penelope R. Buschman, Austin H. Kutscher, Boris Rubinstein, and Francis K. Forstenzer Editors

• Contents I. Loss of a Body PartTraumatic Amputation in Childhood: Functional and Psychosocial Aspects Emotional Reactions to the Loss of a Body Part Reaction of Children and Adolescents to Amputation Amputation and the Reconstruction of Congenital Lesions II. Loss of a Perfect Child Loss of the “Perfect” Child and Ethical Decision Making: Miguel’s Story III. Chronic Loss and Disability Seeking Significance Pediatric Orthopedics: Dealing With Loss and Chronic Sorrow The Impact of the Disabled Child on the Family Some Aspects of Psychosocial Sequelae to Treatment of Scoliosis in Adolescent Girls IV. Dealing With Life-Threatening Disease Care of the Dying Adolescent and the Bereaved Family Depression, Denial, and Withdrawal in Mothers of Seriously Ill Children and Adolescents Suffering by Children: Some Observations of Brave Children and Their Families at a Children’s Hospital The Needs of Sarcoma Patients From Diagnosis Through Follow-Up Treatment of Fractures in Children With Malignancies Advantage of Early Spinal Stabilization and Fusion in Patients With Duchenne Muscular Dystrophy Psychosocial Aspects of Chemotherapy The Ultimate Loss: The Dying Child V. Bereavement Communication Among Children, Parents, and Funeral Directors Parental Grief Over the Death of a Child