Caroline Glendinning is Emeritus Professor of Social Policy at the School for Business and Society, University of York, and an Academician of the Academy of Learned Societies in the Social Sciences. Caroline was Professor of Social Policy in the Social Policy Research Unit from 2004–2014. She led SPRU’s Department of Health funded research programme ‘Choice and Independence Across the Lifecourse’ from 2004–2011. From 2009–2014 she was Associate Director of the NIHR School for Social Care Research and lead SSCR’s Research Programme in SPRU. Caroline was Chair of the UK Social Policy Association, 2008–2011.

• Introduction Part 1: Disabled children and their families 1. The children and their families 2. Discovering the disability 3. Caring from day to day: living with a severely disabled child 4. Effects on the parents 5. Sisters and brothers, family life and wider social networks Part 2: Services and support: the views of a group of consumers 6. Health care in hospital and the community 7. Social services and social work 8. School and education 9. Voluntary organisations and services 10. Financial help: the attendance allowance 11. Financial help: the family fund 12. Disabled children and society Appendix: Research methods used in the study

Caroline Glendinning is Emeritus Professor of Social Policy at the School for Business and Society, University of York, and an Academician of the Academy of Learned Societies in the Social Sciences. Caroline was Professor of Social Policy in the Social Policy Research Unit from 2004–2014. She led SPRU’s Department of Health funded research programme ‘Choice and Independence Across the Lifecourse’ from 2004–2011. From 2009–2014 she was Associate Director of the NIHR School for Social Care Research and lead SSCR’s Research Programme in SPRU. Caroline was Chair of the UK Social Policy Association, 2008–2011.

• Introduction Part 1: Disabled children and their families 1. The children and their families 2. Discovering the disability 3. Caring from day to day: living with a severely disabled child 4. Effects on the parents 5. Sisters and brothers, family life and wider social networks Part 2: Services and support: the views of a group of consumers 6. Health care in hospital and the community 7. Social services and social work 8. School and education 9. Voluntary organisations and services 10. Financial help: the attendance allowance 11. Financial help: the family fund 12. Disabled children and society Appendix: Research methods used in the study

Caroline Glendinning is Emeritus Professor of Social Policy at the School for Business and Society, University of York, and an Academician of the Academy of Learned Societies in the Social Sciences. Caroline was Professor of Social Policy in the Social Policy Research Unit from 2004–2014. She led SPRU’s Department of Health funded research programme ‘Choice and Independence Across the Lifecourse’ from 2004–2011. From 2009–2014 she was Associate Director of the NIHR School for Social Care Research and lead SSCR’s Research Programme in SPRU. Caroline was Chair of the UK Social Policy Association, 2008–2011.

• Introduction Part 1: Disabled children and their families 1. The children and their families 2. Discovering the disability 3. Caring from day to day: living with a severely disabled child 4. Effects on the parents 5. Sisters and brothers, family life and wider social networks Part 2: Services and support: the views of a group of consumers 6. Health care in hospital and the community 7. Social services and social work 8. School and education 9. Voluntary organisations and services 10. Financial help: the attendance allowance 11. Financial help: the family fund 12. Disabled children and society Appendix: Research methods used in the study