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    1. Samhälle och politik
    2. Sociologi och antropologi
    3. Antropologi

    Uncertain Futures

    Communication and Culture in Childhood Cancer Treatment

    AvIgnasi Clemente

    Inbunden, Engelska, 2015

    Del i serien Wiley Blackwell Studies in Discourse and Culture

    1 205 kr

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    E-bok

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    Beskrivning

    This book examines children and young people’s attempts to participate in conversations about their own treatment throughout uncertain cancer trajectories, including the events leading up to diagnosis, treatment, remission, relapse, and cure or death. Clearly and compellingly written, Clemente relies on a new multi-layered method to identify six cancer communication strategiesIllustrates that communication is central to how children, parents, and healthcare professionals constitute, influence, and make sense of the social worlds they inhabit—or that they want to inhabitProvides ethnographic case studies of childhood cancer patients in Spain, using children's own wordsExamines the challenges of how to talk to and how to encourage patients' involvement in reatment discussionsIn his critique of the “telling” versus “not telling” debates, Clemente argues that communication should be adjusted to the children’s own needs, and that children's own questions can indicate how much or little they want to be involvedUncertain Futures is the winner of the 15th Annual Modest Reixach Prize.

    Produktinformation

    • Utgivningsdatum:2015-10-09
    • Mått:170 x 246 x 18 mm
    • Vikt:522 g
    • Format:Inbunden
    • Språk:Engelska
    • Serie:Wiley Blackwell Studies in Discourse and Culture
    • Antal sidor:248
    • Förlag:John Wiley and Sons Ltd
    • ISBN:9781118909713
    • Utmärkelser:Winner of 15th Annual Modest Reixach Prize 2016 (Spain)

    Utforska kategorier

    • Antropologi inom Samhälle och politik
    • Rättsliga frågor i hälso- och sjukvården inom Medicin
    • Språkvetenskap och lingvistik inom Språk och ordböcker

    Mer om författaren

    Ignasi Clemente is Assistant Professor in the Department of Anthropology at Hunter College, CUNY, USA. His research interests include sociocultural and communicative aspects of pain and suffering, childhood studies, and embodied communication. His research on chronically ill children has been published in journals including Social Science and Medicine, Sociology of Health and Illness, and Communication and Medicine. Among others, he has contributed to the Oxford Textbook of Paediatric Pain (2013), the Handbook of Conversation Analysis (Wiley-Blackwell, 2013), Healthcare Settings: Policy, Participation and New Technologies (Wiley-Blackwell, 2010), and the Blackwell Guide to Research Methods in Bilingualism (Blackwell, 2008).

    Recensioner i media

    "...opens up broader margins of reflection about how medical diagnoses, and in general medical communication, are delivered and negotiated and provides the reader with extensive references with which the theoretical discussion is constantly confronted and challenged...Clemente is surely paving the way toward a more fertile and effective collaboration between medical and linguistic anthropology..." - Letizia Bonanno, AAA Book Forum, 2016

    Innehållsförteckning

    • Series Preface ix Acknowledgments xiiPreface xiv1. Children: Contributions to Communication and Illness 1Alternatives to Speaking 5Disclosure as a Dynamic and Heterogeneous Process 7Disclosure to Children with Cancer 10Problematizing Participation 13Uncertainty and the Practice of Optimism 21Multiple Uncertainties 21Hierarchically Organized Uncertainties 23Variable Uncertainties 23Practicing Hope and Optimism 25Ethnography and Conversation Analysis 26Plan of the Book 312. A Linguistic Anthropologist in a Pediatric Cancer Unit 33Culture and Disclosure Practices in Catalonia 34Fieldwork with Children 38Contexts of Children’s Questions 42Investigating Avoidance 44Multiple Ways of Talking about Cancer 473. Living and Dealing with Cancer 49Focusing on Treatment 51Guessing 55Estar baixet (Having Low Blood Cell Counts) 56Les llagues (Mouth Sores) 57La febre (Fever and Infections) 58Being Together 60Acompanyar (Being at the Patient’s Side) 61Menjar (Eating) 63Fer una visita (Visiting) 64Talking Privately 67Uncertainties of Treatment 714. Co]constructing Uncertainty 74Questions and Answers 76Uncertainty and the Topic of Questions 79Contingent Answers 80Contingent Questions 86Uncertainty and the Action of Questions 88Answers that Lead to Subsequent Actions 90Avoiding Answers and Avoiding Silence 93Stepping into the Uncertain Future One Turn at a Time 1005. Engaging in Communication at Catalonia Hospital 102Learning the Diagnosis 103L’entrevista (The Treatment Interview) 109“And When Will I Be Completely Cured?” 111Six Communication Strategies 1276. Patient Pressure and Medical Authority 129Everyday Life in Treatment 130“How Many Chemos Do I Have Left?” 133Seeking Answers Without Challenging Medical Authority 1517. The Limits of Optimism at the End of Treatment 153Remission 154Relapse 159Negotiating Death 161“Is the Day of the Autotransplant Going to Be Delayed?” 168Optimistic Collusion 1788. Conclusion 180Appendix A: Profiles of Patients 189Children (ages 3-6) 189Young people (ages 11-18) 190Appendix B: Transcription Conventions 193References 197Index 214