Christoph Rehmann-Sutter - Böcker

Wish to die statements are becoming a frequent phenomenon in terminally ill patients. Those confronted by these statments need to understand the complexity of such wishes, so they can respond competently and compassionately to the requests. If misunderstood, the statements can be taken at face-value and the practitioner may not recognise that a patient is in fact experiencing ambivalent feelings at the end of life, or they may misinterpret the expressed wish to die as a sign of clinical depression.Public debate about the morality and ethics of various end-of-life care options has exploded in recent years. However, it has never been sensitive to the finer aspects of clinical reality or the experiences of patients. The Patient's Wish to Die: Research, Ethics, and Palliative Care brings together that reality and the patient's voice, combining them with different research approaches. It presents the best available knowledge and research methodologies about patients' wishes at the end-of-life, together with a series of ethical views and a discussion about the clinical implications for palliative care. The book presents material in an open and unbiased manner whilst remaining sensitive to the spiritual and existential dimensions of dying, and to the different cultural views that provide meaning to the individual. Written by the best specialists and ethics scholars from around the world, including palliative care practitioners and end-of-life scholars from countries where assisted dying practices are legalized and from those where it isn't, The The Patient's Wish to Die: Research, Ethics, and Palliative Care will prove essential reading for all those working or studying in the field of palliative care.

There exists today a fast growing availability of personal genetic information. Its prognostic impact and value for an individual or family member's health is sometimes unclear, whilst at other times it is clear-cut. The issue of whether to disclose genetic information does however have wide ranging implications. Avoiding the rhetoric of 'genetic exceptionalism', and drawing on an expanded field of bioethical, sociological and anthropological research, this book sets a new agenda for discussing the ethics surrounding the disclosure of prognostic genetic information. A hermeneutical approach reconsiders the ethics of disclosure in a variety of contexts in which genetic information is generated, requested, interpreted or communicated - from the provider perspective, but also from the moral perspectives of clients and their families. It is in situations of disclosure, in these different contexts, that genetic information meets morality. Providers and recipients can become vulnerable to the revelation or concealment of information, and the forms in which it may be provided. Disclosure Dilemmas invites readers to explore these contexts from an ethical viewpoint and will be a valuable resource for anyone with an interest in biomedical ethics.

There exists today a fast growing availability of personal genetic information. Its prognostic impact and value for an individual or family member's health is sometimes unclear, whilst at other times it is clear-cut. The issue of whether to disclose genetic information does however have wide ranging implications. Avoiding the rhetoric of 'genetic exceptionalism', and drawing on an expanded field of bioethical, sociological and anthropological research, this book sets a new agenda for discussing the ethics surrounding the disclosure of prognostic genetic information. A hermeneutical approach reconsiders the ethics of disclosure in a variety of contexts in which genetic information is generated, requested, interpreted or communicated - from the provider perspective, but also from the moral perspectives of clients and their families. It is in situations of disclosure, in these different contexts, that genetic information meets morality. Providers and recipients can become vulnerable to the revelation or concealment of information, and the forms in which it may be provided. Disclosure Dilemmas invites readers to explore these contexts from an ethical viewpoint and will be a valuable resource for anyone with an interest in biomedical ethics.

In light of scientific advances such as genomics, predictive diagnostics, genetically engineered agriculture, nuclear transfer cloning, and the manipulation of stem cells, the idea that genes carry predetermined molecular programs or blueprints is pervasive. Yet new scientific discoveries-such as rna transcripts of single genes that can lead to the production of different compounds from the same pieces of dna-challenge the concept of the gene alone as the dominant factor in biological development. Increasingly aware of the tension between certain empirical results and interpretations of those results based on the orthodox view of genetic determinism, a growing number of scientists urge a rethinking of what a gene is and how it works. In this collection, a group of internationally renowned scientists present some prominent alternative approaches to understanding the role of dna in the construction and function of biological organisms.Contributors discuss alternatives to the programmatic view of dna, including the developmental systems approach, methodical culturalism, the molecular process concept of the gene, the hermeneutic theory of description, and process structuralist biology. None of the approaches cast doubt on the notion that dna is tremendously important to biological life on earth; rather, contributors examine different ideas of how dna should be represented, evaluated, and explained. Just as ideas about genetic codes have reached far beyond the realm of science, the reconceptualizations of genetic theory in this volume have broad implications for ethics, philosophy, and the social sciences.Contributors. Thomas BÜrglin, Brian C. Goodwin, James Griesemer, Paul Griffiths, Jesper Hoffmeyer, Evelyn Fox Keller, Gerd B. MÜller, Eva M. Neumann-Held, Stuart A. Newman, Susan Oyama, Christoph Rehmann-Sutter, Sahotra Sarkar, Jackie Leach Scully, Gerry Webster, Ulrich Wolf

This book discusses a range of methodological issues for an interdisciplinary bioethics. How can bioethics be an enterprise that does not only isolate issues and moral reasons but also (re)contextualises them? What are the strengths and weaknesses of different traditional and innovative modes of ethical work in terms of these tasks? By introducing the term "finitude" in the sense of limits of human existence, limits of human knowledge and knowledge capacity, a difference was set in the cultural apprehension of medicine. Is medicine aimed at overcoming our existential limits: to fight diseases and prolong life? Finitude reintroduces the existential and cultural basis on which every medicine (limits-sensitive or off-limits medicine) depends, but it concerns also ethical judgment. An apprehension of the limitations of different ethical approaches to biomedicine, however, could strengthen the collaborative effort of an interdisciplinary bioethics that embraces also cultural studies and social sciences.

The development of bioethics has presented us with an ever increasing number of very different discussions over the last four decades. Bioethicists were initially c- cerned about questions of reproduction, end of life, organ transplantation, and a broad range of moral problems raised by the forward march of the life sciences. Meanwhile these sciences grew to be a major in?uence in nearly all areas of our lives. Biotechnology has brought about considerable changes in agriculture, plant breeding, pharmacy, veterinary medicine and medicine in general. These scienti?c and technological changes in turn are having a profound in?uence on economy, law, politics and culture. The life sciences are now certain to change our world in important ways. Because of their potentially all-pervasive and highly diverse impact, bioethical discussions concerning the life sciences are no longer simply about ethical gui- lines or legal regulation of concrete technologies. Certainly, the on-going debates concerning rules and regulations are complicated – and becoming more so. Nev- theless, bioethics cannot be restricted to these topics – they cover but a fraction of the social and personal consequences of bio-technological change. The life sciences drive us to rethink long-time-honoured concepts of humanness, of personhood, of nature. Bioethics therefore needs to develop an understanding of the impact those changes have on the conceptualization of the ethical dimension of the life sciences.

This open access book offers insights in short- and long-term experiences from families with bone marrow transplantations between minor siblings. It is based on the first extended qualitative study with 17 families about experiences with recent transplants and experiences with transplants up to 20 years in the past.

This open access book offers insights in short- and long-term experiences from families with bone marrow transplantations between minor siblings. It is based on the first extended qualitative study with 17 families about experiences with recent transplants and experiences with transplants up to 20 years in the past.

Genetic Transparency? tackles the question of who has, or should have access to personal genomic information. Genomic science is revolutionary in how it changes the way we live, individually and together, and how it changes the shape of society. If this is so, then – the authors of this volume claim – the rules that regulate genetic transparency should be debated carefully, openly and critically.It is important to see that the social and cultural meanings of DNA and genetic sequences are much richer than can be accounted for by purely biomedical knowledge. In this book, an international group of leading genomics experts and scholars from the humanities and social sciences discuss how the new accessibility of genomic information affects interpersonal relationships, our self-understandings, ethics, law, and healthcare systems.Contributors are: Kirsten Brukamp, Gabrielle Christenhusz, Lorraine Cowley, Malte Dreyer, Jeanette Erdmann, Andrei Famenka, Teresa Finlay, Caroline Fündling, Shannon Gibson, Cathy Herbrand, Angeliki Kerasidou, Lene Koch, Fruzsina Molnár-Gábor, Tim Ohnhäuser, Christoph Rehmann-Sutter, Benedikt Reiz, Vasilja Rolfes, Sara Tocchetti

Nanotechnology has been the subject of extensive ‘assessment hype,’ unlike any previous field of research and development. A multiplicity of stakeholders have started to analyze the implications of nanotechnology: Technology assessment institutions around the world, non-governmental organizations, think tanks, re-insurance companies, and academics from science and technology studies and applied ethics have turned their attention to this growing field’s implications. In the course of these assessment efforts, a social phenomenon has emerged – a phenomenon the editors define as assessment regime.Despite the variety of organizations, methods, and actors involved in the evaluation and regulation of emerging nanotechnologies, the assessment activities comply with an overarching scientific and political imperative: Innovations are only welcome if they are assessed against the criteria of safety, sustainability, desirability, and acceptability. So far, such deliberations and reflections have played only a subordinate role. This book argues that with the rise of the nanotechnology assessment regime, however, things have changed dramatically: Situated at the crossroads of democratizing science and technology, good governance, and the quest for sustainable innovations, the assessment regime has become constitutive for technological development.The contributions in this book explore and critically analyse nanotechnology’s assessment regime: To what extent is it constitutive for technology in general, for nanotechnology in particular? What social conditions render the regime a phenomenon sui generis? And what are its implications for science and society?

This book discusses a range of methodological issues for an interdisciplinary bioethics. How can bioethics be an enterprise that does not only isolate issues and moral reasons but also (re)contextualises them? What are the strengths and weaknesses of different traditional and innovative modes of ethical work in terms of these tasks? By introducing the term "finitude" in the sense of limits of human existence, limits of human knowledge and knowledge capacity, a difference was set in the cultural apprehension of medicine. Is medicine aimed at overcoming our existential limits: to fight diseases and prolong life? Finitude reintroduces the existential and cultural basis on which every medicine (limits-sensitive or off-limits medicine) depends, but it concerns also ethical judgment. An apprehension of the limitations of different ethical approaches to biomedicine, however, could strengthen the collaborative effort of an interdisciplinary bioethics that embraces also cultural studies and social sciences.

The development of bioethics has presented us with an ever increasing number of very different discussions over the last four decades. Bioethicists were initially c- cerned about questions of reproduction, end of life, organ transplantation, and a broad range of moral problems raised by the forward march of the life sciences. Meanwhile these sciences grew to be a major in?uence in nearly all areas of our lives. Biotechnology has brought about considerable changes in agriculture, plant breeding, pharmacy, veterinary medicine and medicine in general. These scienti?c and technological changes in turn are having a profound in?uence on economy, law, politics and culture. The life sciences are now certain to change our world in important ways. Because of their potentially all-pervasive and highly diverse impact, bioethical discussions concerning the life sciences are no longer simply about ethical gui- lines or legal regulation of concrete technologies. Certainly, the on-going debates concerning rules and regulations are complicated – and becoming more so. Nev- theless, bioethics cannot be restricted to these topics – they cover but a fraction of the social and personal consequences of bio-technological change. The life sciences drive us to rethink long-time-honoured concepts of humanness, of personhood, of nature. Bioethics therefore needs to develop an understanding of the impact those changes have on the conceptualization of the ethical dimension of the life sciences.