Anthropologies of American Medicine: Culture, Power, and Practice – serie

Transnational Reproduction traces the relationships among Western aspiring parents, Indian surrogates, and egg donors from around the world. In the early 2010s India was one of the top providers of surrogacy services in the world. Drawing on interviews with commissioning parents, surrogates, and egg donors as well as doctors and family members, Daisy Deomampo argues that while the surrogacy industry in India offers a clear example of "stratified reproduction"—the ways in which political, economic, and social forces structure the conditions under which women carry out physical and social reproductive labor—it also complicates that concept as the various actors in this reproductive work struggle to understand their relationships to one another. The book shows how these actors make sense of their connections, illuminating the ways in which kinship ties are challenged, transformed, or reinforced in the context of transnational gestational surrogacy. The volume revisits the concept of stratified reproduction in ways that offer a more robust and nuanced understanding of race and power as ideas about kinship intersect with structures of inequality. It demonstrates that while reproductive actors share a common quest for conception, they make sense of family in the context of globalized assisted reproductive technologies in very different ways. In doing so, Deomampo uncovers the specific racial reproductive imaginaries that underpin the unequal relations at the heart of transnational surrogacy.

Winner, 2020 Eileen Basker Memorial Prize, given by the Society for Medical AnthropologyThe troubling dynamic of the American home care industry where increased independence for the elderly conflicts with the well being of caregivers Paid home care is one of the fastest growing occupations in the United States, and millions of Americans rely on these workers to help them remain at home as they grow older. However, the industry is rife with contradictions. The United States spends a fortune on medical care, yet devotes comparatively few resources on improving wages, thus placing home care providers in the ranks of the working poor. As a result, the work that enables some older Americans to live independently generates profound social inequalities. Inequalities of Aging explores the ways in which these inequalities play out on the ground as workers, who are disproportionately women of color and immigrants, earn poverty-level wages and often struggle to provide for themselves and their families. The ethnographic narrative reveals how two of the nation's most pressing concerns—rising social inequality and caring for an aging population—intersect to transform the lives of older adults, home care workers, and the world around them. The book takes readers inside the homes and offices of people connected to two Chicago area home care agencies serving low-income and affluent older adults, respectively. Through intimate portrayals of daily life, Elana D. Buch illustrates how diverse histories, care practices, and social policies overlap and contribute to social inequality.Illuminating the lived experience of both workers and their clients, Inequalities of Aging shows the different ways in which the idea of independence both connects and shapes the lives of the elderly and the working poor.

Finalist, 2020 Elliott P. Skinner Award, given by the Association of Africanist AnthropologyExamines why African care workers feel politically excluded from the United States Care for America's growing elderly population is increasingly provided by migrants, and the demand for health care labor is only expected to grow. Because of this health care crunch and the low barriers to entry, new African immigrants have adopted elder care as a niche employment sector, funneling their friends and relatives into this occupation. However, elder care puts care workers into racialized, gendered, and age hierarchies, making it difficult for them to achieve social and economic mobility. In The New American Servitude, Coe demonstrates how these workers often struggle to find a sense of political and social belonging. They are regularly subjected to racial insults and demonstrations of power—and effectively turned into servants—at the hands of other members of the care worker network, including clients and their relatives, agency staff, and even other care workers. Low pay, a lack of benefits, and a lack of stable employment, combined with a lack of appreciation for their efforts, often alienate them, so that many come to believe that they cannot lead valuable lives in the United States. While jobs are a means of acculturating new immigrants, African care workers don't tend to become involved or politically active. Many plan to leave rather than putting down roots in the US. Offering revealing insights into the dark side of a burgeoning economy, The New American Servitude carries serious implications for the future of labor and justice in the care work industry.

Winner, 2020 Eileen Basker Memorial Prize, given by the Society for Medical AnthropologyThe troubling dynamic of the American home care industry where increased independence for the elderly conflicts with the well being of caregivers Paid home care is one of the fastest growing occupations in the United States, and millions of Americans rely on these workers to help them remain at home as they grow older. However, the industry is rife with contradictions. The United States spends a fortune on medical care, yet devotes comparatively few resources on improving wages, thus placing home care providers in the ranks of the working poor. As a result, the work that enables some older Americans to live independently generates profound social inequalities. Inequalities of Aging explores the ways in which these inequalities play out on the ground as workers, who are disproportionately women of color and immigrants, earn poverty-level wages and often struggle to provide for themselves and their families. The ethnographic narrative reveals how two of the nation's most pressing concerns—rising social inequality and caring for an aging population—intersect to transform the lives of older adults, home care workers, and the world around them. The book takes readers inside the homes and offices of people connected to two Chicago area home care agencies serving low-income and affluent older adults, respectively. Through intimate portrayals of daily life, Elana D. Buch illustrates how diverse histories, care practices, and social policies overlap and contribute to social inequality.Illuminating the lived experience of both workers and their clients, Inequalities of Aging shows the different ways in which the idea of independence both connects and shapes the lives of the elderly and the working poor.

Winner, 2020 Senior Book Prize, given by the Association of Feminist Anthropology Winner, 2020 Eileen Basker Memorial Prize, given by the Society for Medical Anthropology Honorable Mention, 2020 Victor Turner Prize in Ethnographic Writing, given by the Society for Humanistic AnthropologyFinalist, 2020 PROSE Award in the Sociology, Anthropology and Criminology category, given by the Association of American Publishers A troubling study of the role that medical racism plays in the lives of Black women who have given birth to premature and low birth weight infantsBlack women have higher rates of premature birth than other women in America. This cannot be simply explained by economic factors, with poorer women lacking resources or access to care. Even professional, middle-class Black women are at a much higher risk of premature birth than low-income white women in the United States. Dána-Ain Davis looks into this phenomenon, placing racial differences in birth outcomes into a historical context, revealing that ideas about reproduction and race today have been influenced by the legacy of ideas which developed during the era of slavery.While poor and low-income Black women are often the "mascots" of premature birth outcomes, this book focuses on professional Black women, who are just as likely to give birth prematurely. Drawing on an impressive array of interviews with nearly fifty mothers, fathers, neonatologists, nurses, midwives, and reproductive justice advocates, Dána-Ain Davis argues that events leading up to an infant's arrival in a neonatal intensive care unit (NICU), and the parents' experiences while they are in the NICU, reveal subtle but pernicious forms of racism that confound the perceived class dynamics that are frequently understood to be a central factor of premature birth.The book argues not only that medical racism persists and must be considered when examining adverse outcomes—as well as upsetting experiences for parents—but also that NICUs and life-saving technologies should not be the only strategies for improving the outcomes for Black pregnant women and their babies. Davis makes the case for other avenues, such as community-based birthing projects, doulas, and midwives, that support women during pregnancy and labor are just as important and effective in avoiding premature births and mortality.

Answers the question: Why are women freezing their eggs?Why are women freezing their eggs in record numbers? Motherhood on Ice explores this question by drawing on the stories of more than 150 women who pursued fertility preservation technology. Moving between narratives of pain and empowerment, these nuanced personal stories reveal the complexity of women's lives as they struggle to preserve and extend their fertility. Contrary to popular belief, egg freezing is rarely about women postponing fertility for the sake of their careers. Rather, the most-educated women are increasingly forced to delay childbearing because they face a mating gap—a lack of eligible, educated, equal partners ready for marriage and parenthood. For these women, egg freezing is a reproductive backstop, a technological attempt to bridge the gap while waiting for the right partner. But it is not an easy choice for most. Their stories reveal the extent to which it is logistically complicated, physically taxing, financially demanding, emotionally draining, and uncertain in its effects. In this powerful book, women share their reflections on their clinical encounters, as well as the immense hopes and investments they place in this high-tech fertility preservation strategy. Race, religion, and the role of men in the lives of single women pursuing this technology are also explored. A distinctly human portrait of an understudied and rapidly growing population, Motherhood on Ice examines what is at stake for women who take comfort in their frozen eggs while embarking on their quests for partnership, pregnancy, and parenting.

Winner of the 2024 Senior Book Prize from the Association of Feminist Anthropology A compelling analysis of social inequality through the perspective of pregnant, low-wage service workersThe low-wage service industry is one of the fastest-growing employment sectors in the US economy. Its workers disproportionately tend to be low-income and minority women. Service sector work entails rigid forms of temporal discipline manifested in work requirements for flexible, last-minute, and round-the-clock availability, as well as limited to no eligibility for sick and parental leaves, all of which impact workers' ability to care for themselves and their dependents.Pregnant at Work examines the experiences of pregnant service sector workers in New York City as they try to navigate the time conflicts between precarious low-wage service labor and safety net prenatal care. Through interviews and fieldwork in a prenatal clinic of a public hospital, Elise Andaya vividly describes workers' struggles to maintain expected tempos of labor as their pregnancies progress as well as their efforts to schedule and attend prenatal care, where waiting is a constant factor—a reflection of the pervasive belief that poor people's time is less valuable than that of other people.Pregnant at Work is a compelling examination of the ways in which power and inequalities of race, class, gender, and immigration status are produced and reproduced in the US, including in individual pregnant bodies. The stories of the pregnant workers featured in this book underscore the urgency of movements towards temporal justice and a new politics of care in the twenty-first century.

Winner of the 2024 Senior Book Prize from the Association of Feminist Anthropology A compelling analysis of social inequality through the perspective of pregnant, low-wage service workersThe low-wage service industry is one of the fastest-growing employment sectors in the US economy. Its workers disproportionately tend to be low-income and minority women. Service sector work entails rigid forms of temporal discipline manifested in work requirements for flexible, last-minute, and round-the-clock availability, as well as limited to no eligibility for sick and parental leaves, all of which impact workers' ability to care for themselves and their dependents.Pregnant at Work examines the experiences of pregnant service sector workers in New York City as they try to navigate the time conflicts between precarious low-wage service labor and safety net prenatal care. Through interviews and fieldwork in a prenatal clinic of a public hospital, Elise Andaya vividly describes workers' struggles to maintain expected tempos of labor as their pregnancies progress as well as their efforts to schedule and attend prenatal care, where waiting is a constant factor—a reflection of the pervasive belief that poor people's time is less valuable than that of other people.Pregnant at Work is a compelling examination of the ways in which power and inequalities of race, class, gender, and immigration status are produced and reproduced in the US, including in individual pregnant bodies. The stories of the pregnant workers featured in this book underscore the urgency of movements towards temporal justice and a new politics of care in the twenty-first century.

Argues that self-management approaches for depressive disorders ask the most from those with the leastTherapeutic Inequalities offers a powerful and timely critique of the U.S. mental healthcare system, uncovering how structural disparities are maintained – and often hidden – through the widespread promotion of "self-management." Drawing on two years of ethnographic fieldwork and community-engaged research, the volume traces how "self-management" – a treatment model that encourages patients to regulate their own conditions – has gained prominence in the care of mood disorders like depression.As mood disorders have become leading causes of disability in the United States, public health officials have embraced a biomedical framing that casts them as brain diseases. While this medicalized approach has helped to reduce stigma, it has also justified shifting responsibility for care onto individuals, especially those already disadvantaged by systemic racism, poverty, and the erosion of public mental health infrastructure.Weiner shows how the logic of self-management aligns with neoliberal ideals of personal responsibility, while obscuring the broader conditions that shape mental health outcomes. Far from simply diagnosing the failures of the current system, Therapeutic Inequalities asks what a more humane, interconnected model of care might look like. It calls for a radical reimagining of both mental health and personhood – one that values empathy, community, and the recognition of our shared vulnerabilities.

Argues that self-management approaches for depressive disorders ask the most from those with the leastTherapeutic Inequalities offers a powerful and timely critique of the U.S. mental healthcare system, uncovering how structural disparities are maintained – and often hidden – through the widespread promotion of "self-management." Drawing on two years of ethnographic fieldwork and community-engaged research, the volume traces how "self-management" – a treatment model that encourages patients to regulate their own conditions – has gained prominence in the care of mood disorders like depression.As mood disorders have become leading causes of disability in the United States, public health officials have embraced a biomedical framing that casts them as brain diseases. While this medicalized approach has helped to reduce stigma, it has also justified shifting responsibility for care onto individuals, especially those already disadvantaged by systemic racism, poverty, and the erosion of public mental health infrastructure.Weiner shows how the logic of self-management aligns with neoliberal ideals of personal responsibility, while obscuring the broader conditions that shape mental health outcomes. Far from simply diagnosing the failures of the current system, Therapeutic Inequalities asks what a more humane, interconnected model of care might look like. It calls for a radical reimagining of both mental health and personhood – one that values empathy, community, and the recognition of our shared vulnerabilities.

Winner of the 2024 Eileen Basker Memorial Prize from the Society for Medical Anthropology How embryo adoption advances the Christian Right's political goals for creating a Christian nationIn 1997, a group of white pro-life evangelical Christians in the United States created the nation's first embryo adoption program to "save" the thousands of frozen human embryos remaining from assisted reproduction procedures, which they contend are unborn children. While a small part of US fertility services, embryo adoption has played an outsized role in conservative politics, from high-profile battles over public investment in human embryonic stem cell research to the overturning of Roe v. Wade. Based on six years of ethnographic research with embryo adoption staff and participants, Risa Cromer uncovers how embryo adoption advances ambitious political goals for expanding the influence of conservative Christian values and power.Conceiving Christian America is the first book on embryo adoption tracing how this powerful social movement draws on white saviorist tropes in their aims to reconceive personhood, with drastic consequences for reproductive rights and justice. Documenting the practices, narratives, and beliefs that move embryos from freezers to uteruses, this book wields anthropological wariness as a tool for confronting the multiple tactics of the Christian Right. Timely and provocative, Conceiving Christian America presents a bold and nuanced examination of a family-making process focused on conceiving a Christian nation.

Winner of the 2024 Eileen Basker Memorial Prize from the Society for Medical Anthropology How embryo adoption advances the Christian Right's political goals for creating a Christian nationIn 1997, a group of white pro-life evangelical Christians in the United States created the nation's first embryo adoption program to "save" the thousands of frozen human embryos remaining from assisted reproduction procedures, which they contend are unborn children. While a small part of US fertility services, embryo adoption has played an outsized role in conservative politics, from high-profile battles over public investment in human embryonic stem cell research to the overturning of Roe v. Wade. Based on six years of ethnographic research with embryo adoption staff and participants, Risa Cromer uncovers how embryo adoption advances ambitious political goals for expanding the influence of conservative Christian values and power.Conceiving Christian America is the first book on embryo adoption tracing how this powerful social movement draws on white saviorist tropes in their aims to reconceive personhood, with drastic consequences for reproductive rights and justice. Documenting the practices, narratives, and beliefs that move embryos from freezers to uteruses, this book wields anthropological wariness as a tool for confronting the multiple tactics of the Christian Right. Timely and provocative, Conceiving Christian America presents a bold and nuanced examination of a family-making process focused on conceiving a Christian nation.

Explores experiences with disability and aging for immigrant survivors of domestic violence across thelife courseAcross the United States, one in three women experiences violence in their intimate relationships. More resources are now being devoted to providing these women with immediate care; but what happens to survivors, especially those from marginalized communities, as they grow older and grapple with the long-term effects? In Violence Never Heals, Allison Bloom presents a life-course perspective on the disabling experience of violence in Latina immigrant communities.Drawing on extensive ethnographic fieldwork performed in a Latina program at an Intimate Partner Violence (IPV) crisis center, Bloom offers insights into the long-term effects of systemic and gender-based violence, revealing that these experiences become subtly disabling long before old age. Drawing from her own background as a practitioner, Bloom further details how current IPV services fail to acknowledge and accommodate such effects, in large part because of their disproportionate focus on younger survivors and the particular development of the domestic violence services field. She offers both scholars and practitioners concrete strategies for how they can alter their approaches to better treat and mitigate the lifelong effects of domestic violence. Violence Never Heals addresses a glaring omission in IPV scholarship, providing both an aging-focused perspective on IPV as well as laying out concrete steps for how to implement this perspective in pursuit of more comprehensive treatment.

Explores experiences with disability and aging for immigrant survivors of domestic violence across thelife courseAcross the United States, one in three women experiences violence in their intimate relationships. More resources are now being devoted to providing these women with immediate care; but what happens to survivors, especially those from marginalized communities, as they grow older and grapple with the long-term effects? In Violence Never Heals, Allison Bloom presents a life-course perspective on the disabling experience of violence in Latina immigrant communities.Drawing on extensive ethnographic fieldwork performed in a Latina program at an Intimate Partner Violence (IPV) crisis center, Bloom offers insights into the long-term effects of systemic and gender-based violence, revealing that these experiences become subtly disabling long before old age. Drawing from her own background as a practitioner, Bloom further details how current IPV services fail to acknowledge and accommodate such effects, in large part because of their disproportionate focus on younger survivors and the particular development of the domestic violence services field. She offers both scholars and practitioners concrete strategies for how they can alter their approaches to better treat and mitigate the lifelong effects of domestic violence. Violence Never Heals addresses a glaring omission in IPV scholarship, providing both an aging-focused perspective on IPV as well as laying out concrete steps for how to implement this perspective in pursuit of more comprehensive treatment.

Explores informal global health action and the importance of intentions of those who volunteerIn the past two decades, medical missions have gained popularity among medical professionals, who view these excursions as important ethical interventions. Indeed, the notion of giving back by volunteering in rural or impoverished communities is celebrated as an ideal act of selflessness, one whose effects are unquestionably beneficial to those being served.Good Intentions in Global Health is a groundbreaking exploration of the growing realm of informal global health engagement, shedding light on the intricate interplay between intentions, emotions, and ethical considerations. Drawing on fieldwork in Guatemala, Nicole S. Berry investigates those who volunteer for short-term medical missions, revealing how the intent to do good shapes their everyday understandings of their own actions taken in the global health domain.Berry uncovers how the glorification of medical missions can obscure problems that stem from North American clinicians doctoring in places where they typically do not understand the context. The short-term nature of missions also means that volunteers are not privy to the long-term effects of their actions—the potential harms that may arise from a lack of sustained follow-up care or the utter absence of documentation that they were even there. By relying on gut instincts to reassure themselves that they are doing good, volunteers often bypass a comprehensive assessment of the ethical dimensions underlying their global health work.Good Intentions in Global Health shows why desires and emotions are increasingly important to contemporary global health. She makes the case that we must pay attention to volunteers' perceptions of their work, however wrongheaded or naïve, in order to truly influence global health on the ground.

Explores informal global health action and the importance of intentions of those who volunteerIn the past two decades, medical missions have gained popularity among medical professionals, who view these excursions as important ethical interventions. Indeed, the notion of giving back by volunteering in rural or impoverished communities is celebrated as an ideal act of selflessness, one whose effects are unquestionably beneficial to those being served.Good Intentions in Global Health is a groundbreaking exploration of the growing realm of informal global health engagement, shedding light on the intricate interplay between intentions, emotions, and ethical considerations. Drawing on fieldwork in Guatemala, Nicole S. Berry investigates those who volunteer for short-term medical missions, revealing how the intent to do good shapes their everyday understandings of their own actions taken in the global health domain.Berry uncovers how the glorification of medical missions can obscure problems that stem from North American clinicians doctoring in places where they typically do not understand the context. The short-term nature of missions also means that volunteers are not privy to the long-term effects of their actions—the potential harms that may arise from a lack of sustained follow-up care or the utter absence of documentation that they were even there. By relying on gut instincts to reassure themselves that they are doing good, volunteers often bypass a comprehensive assessment of the ethical dimensions underlying their global health work.Good Intentions in Global Health shows why desires and emotions are increasingly important to contemporary global health. She makes the case that we must pay attention to volunteers' perceptions of their work, however wrongheaded or naïve, in order to truly influence global health on the ground.

Transnational Reproduction traces the relationships among Western aspiring parents, Indian surrogates, and egg donors from around the world. In the early 2010s India was one of the top providers of surrogacy services in the world. Drawing on interviews with commissioning parents, surrogates, and egg donors as well as doctors and family members, Daisy Deomampo argues that while the surrogacy industry in India offers a clear example of "stratified reproduction"—the ways in which political, economic, and social forces structure the conditions under which women carry out physical and social reproductive labor—it also complicates that concept as the various actors in this reproductive work struggle to understand their relationships to one another. The book shows how these actors make sense of their connections, illuminating the ways in which kinship ties are challenged, transformed, or reinforced in the context of transnational gestational surrogacy. The volume revisits the concept of stratified reproduction in ways that offer a more robust and nuanced understanding of race and power as ideas about kinship intersect with structures of inequality. It demonstrates that while reproductive actors share a common quest for conception, they make sense of family in the context of globalized assisted reproductive technologies in very different ways. In doing so, Deomampo uncovers the specific racial reproductive imaginaries that underpin the unequal relations at the heart of transnational surrogacy.

Finalist, 2020 Elliott P. Skinner Award, given by the Association of Africanist AnthropologyExamines why African care workers feel politically excluded from the United States Care for America's growing elderly population is increasingly provided by migrants, and the demand for health care labor is only expected to grow. Because of this health care crunch and the low barriers to entry, new African immigrants have adopted elder care as a niche employment sector, funneling their friends and relatives into this occupation. However, elder care puts care workers into racialized, gendered, and age hierarchies, making it difficult for them to achieve social and economic mobility. In The New American Servitude, Coe demonstrates how these workers often struggle to find a sense of political and social belonging. They are regularly subjected to racial insults and demonstrations of power—and effectively turned into servants—at the hands of other members of the care worker network, including clients and their relatives, agency staff, and even other care workers. Low pay, a lack of benefits, and a lack of stable employment, combined with a lack of appreciation for their efforts, often alienate them, so that many come to believe that they cannot lead valuable lives in the United States. While jobs are a means of acculturating new immigrants, African care workers don't tend to become involved or politically active. Many plan to leave rather than putting down roots in the US. Offering revealing insights into the dark side of a burgeoning economy, The New American Servitude carries serious implications for the future of labor and justice in the care work industry.

Explores forms of maternal harm stemming from US policies on the US-Mexico borderIn El Paso, Texas, the racist undertones of anti-immigrant sentiment have contributed to various forms of violence in the region, including the 2019 mass shooting that was the deadliest attack on Latinos in US history. As the community continued to mourn this tragedy, the COVID-19 pandemic unleashed yet another set of economic, social, and public health catastrophes that were disproportionately felt within the border region.In Birth in Times of Despair, Carina Heckert traces women's emotional experiences of pregnancy, birth, and the postpartum period in the midst of a series of longstanding and ongoing crises in the US-Mexico border region. Drawing from interviews, surveys, and medical records of women who gave birth during an intense period of sociopolitical crisis, she examines how limited access to health care, inhumane immigration policies, and exposure to an array of harmful social environmental circumstances serve as sources of intense harm for pregnant and recently pregnant women. In so doing, Heckert reveals how these experiences serve as a profound critique of policies that continue to fail to protect women and their families. She concludes with suggestions for practical, humane, and urgent policy changes to alleviate the needless suffering of this vulnerable group.With its comprehensive portrait of the abysmal physical and mental health outcomes pregnant women face within the border region, Birth in Times of Despair expands our understanding of how obstetric violence is enhanced by the structural violence of the state, and unveils the urgency to ameliorate the harm caused by current immigration policies.

Explores forms of maternal harm stemming from US policies on the US-Mexico borderIn El Paso, Texas, the racist undertones of anti-immigrant sentiment have contributed to various forms of violence in the region, including the 2019 mass shooting that was the deadliest attack on Latinos in US history. As the community continued to mourn this tragedy, the COVID-19 pandemic unleashed yet another set of economic, social, and public health catastrophes that were disproportionately felt within the border region.In Birth in Times of Despair, Carina Heckert traces women's emotional experiences of pregnancy, birth, and the postpartum period in the midst of a series of longstanding and ongoing crises in the US-Mexico border region. Drawing from interviews, surveys, and medical records of women who gave birth during an intense period of sociopolitical crisis, she examines how limited access to health care, inhumane immigration policies, and exposure to an array of harmful social environmental circumstances serve as sources of intense harm for pregnant and recently pregnant women. In so doing, Heckert reveals how these experiences serve as a profound critique of policies that continue to fail to protect women and their families. She concludes with suggestions for practical, humane, and urgent policy changes to alleviate the needless suffering of this vulnerable group.With its comprehensive portrait of the abysmal physical and mental health outcomes pregnant women face within the border region, Birth in Times of Despair expands our understanding of how obstetric violence is enhanced by the structural violence of the state, and unveils the urgency to ameliorate the harm caused by current immigration policies.

Exposes the racial hierarchies in how human eggs are marketed and soldConceiving Asian Babies offers a compelling and timely exploration of race, identity, reproduction, and capitalism within the industry of human egg donation. Far from being a purely medical or personal matter, egg donation serves as a powerful lens for understanding how race-based hierarchies and racial capitalism operate within one of our most intimate life processes: creating a family.Daisy Deomampo examines how racial capitalism fundamentally shapes the market for human eggs. By focusing on the ways the egg donation industry constructs race and identity, Deomampo shows how the demand for "Asian eggs" as a commodity reinforces biogenetic understandings of race. By exploring the overt and subtle ways the egg donor market reifies racial identities, the book illuminates the profound and often troubling links between racial capitalism and reproductive projects.Centering the experiences of women enmeshed in the industry, the book displays how the egg donation industry reinforces racial hierarchies and shapes notions of family and identity for Asian American communities. Offering a comprehensive and in-depth analysis of how race becomes a source of capital, benefit, and risk in the global reproductive market, Conceiving Asian Babies illustrates the links between reproductive practices and capitalist motivations.

Answers the question: Why are women freezing their eggs?Why are women freezing their eggs in record numbers? Motherhood on Ice explores this question by drawing on the stories of more than 150 women who pursued fertility preservation technology. Moving between narratives of pain and empowerment, these nuanced personal stories reveal the complexity of women's lives as they struggle to preserve and extend their fertility. Contrary to popular belief, egg freezing is rarely about women postponing fertility for the sake of their careers. Rather, the most-educated women are increasingly forced to delay childbearing because they face a mating gap—a lack of eligible, educated, equal partners ready for marriage and parenthood. For these women, egg freezing is a reproductive backstop, a technological attempt to bridge the gap while waiting for the right partner. But it is not an easy choice for most. Their stories reveal the extent to which it is logistically complicated, physically taxing, financially demanding, emotionally draining, and uncertain in its effects. In this powerful book, women share their reflections on their clinical encounters, as well as the immense hopes and investments they place in this high-tech fertility preservation strategy. Race, religion, and the role of men in the lives of single women pursuing this technology are also explored. A distinctly human portrait of an understudied and rapidly growing population, Motherhood on Ice examines what is at stake for women who take comfort in their frozen eggs while embarking on their quests for partnership, pregnancy, and parenting.

The Affordable Care Act's impact on coverage, access to care, and systematic exclusion in our health care system The Affordable Care Act set off an unprecedented wave of health insurance enrollment as the most sweeping overhaul of the U.S. health insurance system since 1965. In the years since its enactment, some 20 million uninsured Americans gained access to coverage. And yet, the law remained unpopular and politically vulnerable. While the ACA extended social protections to some groups, its implementation was troubled and the act itself created new forms of exclusion. Access to affordable coverage options were highly segmented by state of residence, income, and citizenship status. Unequal Coverage documents the everyday experiences of individuals and families across the U.S. as they attempted to access coverage and care in the five years following the passage of the ACA.It argues that while the Affordable Care Act succeeded in expanding access to care, it did so unevenly, ultimately also generating inequality and stratification. The volume investigates the outcomes of the ACA in communities throughout the country and provides up-close, intimate portraits of individuals and groups trying to access and provide health care for both the newly insured and those who remain uncovered. The contributors use the ACA as a lens to examine more broadly how social welfare policies in a multiracial and multiethnic democracy purport to be inclusive while simultaneously embracing certain kinds of exclusions. Unequal Coverage concludes with an examination of the Affordable Care Act's uncertain legacy under the new Presidential administration and considers what the future may hold for the American health care system. The book illustrates lessons learned and reveals how the law became a flashpoint for battles over inequality, fairness, and the role of government.More books on the health care debate

Winner, 2020 Senior Book Prize, given by the Association of Feminist Anthropology Winner, 2020 Eileen Basker Memorial Prize, given by the Society for Medical Anthropology Honorable Mention, 2020 Victor Turner Prize in Ethnographic Writing, given by the Society for Humanistic AnthropologyFinalist, 2020 PROSE Award in the Sociology, Anthropology and Criminology category, given by the Association of American Publishers A troubling study of the role that medical racism plays in the lives of Black women who have given birth to premature and low birth weight infantsBlack women have higher rates of premature birth than other women in America. This cannot be simply explained by economic factors, with poorer women lacking resources or access to care. Even professional, middle-class Black women are at a much higher risk of premature birth than low-income white women in the United States. Dána-Ain Davis looks into this phenomenon, placing racial differences in birth outcomes into a historical context, revealing that ideas about reproduction and race today have been influenced by the legacy of ideas which developed during the era of slavery.While poor and low-income Black women are often the "mascots" of premature birth outcomes, this book focuses on professional Black women, who are just as likely to give birth prematurely. Drawing on an impressive array of interviews with nearly fifty mothers, fathers, neonatologists, nurses, midwives, and reproductive justice advocates, Dána-Ain Davis argues that events leading up to an infant's arrival in a neonatal intensive care unit (NICU), and the parents' experiences while they are in the NICU, reveal subtle but pernicious forms of racism that confound the perceived class dynamics that are frequently understood to be a central factor of premature birth.The book argues not only that medical racism persists and must be considered when examining adverse outcomes—as well as upsetting experiences for parents—but also that NICUs and life-saving technologies should not be the only strategies for improving the outcomes for Black pregnant women and their babies. Davis makes the case for other avenues, such as community-based birthing projects, doulas, and midwives, that support women during pregnancy and labor are just as important and effective in avoiding premature births and mortality.

Winner, 2022 Donald W. Light Award for Applied Medical Sociology, given by the Medical Sociology Section of the American Sociological AssociationWinner, 2021 Robert K. Merton Book Award, given by the Science, Knowledge, and Technology Section of the American Sociological Association2021 Outstanding Academic Title, Choice Magazine Explores the social inequality of clinical drug testing and its effects on scientific resultsImagine that you volunteer for the clinical trial of an experimental drug. The only direct benefit of participating is that you will receive up to $5,175. You must spend twenty nights literally locked in a research facility. You will be told what to eat, when to eat, and when to sleep. You will share a bedroom with several strangers. Who are you, and why would you choose to take part in this kind of study? This book explores the hidden world of pharmaceutical testing on healthy volunteers. Drawing on two years of fieldwork in clinics across the country and 268 interviews with participants and staff, it illustrates how decisions to take part in such studies are often influenced by poverty and lack of employment opportunities. It shows that healthy participants are typically recruited from African American and Latino/a communities, and that they are often serial participants, who obtain a significant portion of their income from these trials. This book reveals not only how social inequality fundamentally shapes these drug trials, but it also depicts the important validity concerns inherent in this mode of testing new pharmaceuticals. These highly controlled studies bear little resemblance to real-world conditions, and everyone involved is incentivized to game the system, ultimately making new drugs appear safer than they really are. Adverse Events provides an unprecedented view of the intersection of racial inequalities with pharmaceutical testing, signaling the dangers of this research enterprise to both social justice and public health.

Honorable Mention, 2020 Stirling Prize for Best Published Work in Psychological Anthropology, given by the Society for Psychological AnthropologyHonorable Mention, New Millennium Book Award, given by the Society for Medical Anthropology How youth on the autism spectrum negotiate the contested meanings of neurodiversityAutism is a deeply contested condition. To some, it is a devastating invader, harming children and isolating them. To others, it is an asset and a distinctive aspect of an individual's identity. How do young people on the spectrum make sense of this conflict, in the context of their own developing identity? While most of the research on Asperger's and related autism conditions has been conducted with individuals or in settings in which people on the spectrum are in the minority, this book draws on two years of ethnographic work in communities that bring people with Asperger's and related conditions together. It can thus begin to explore a form of autistic culture, through attending to how those on the spectrum make sense of their conditions through shared social practices.Elizabeth Fein brings her many years of experience in both clinical psychology and psychological anthropology to analyze the connection between neuropsychological difference and culture. She argues that current medical models, which espouse a limited definition, are ill equipped to deal with the challenges of discussing autism-related conditions. Consequently, youths on the autism spectrum reach beyond medicine for their stories of difference and disorder, drawing instead on shared mythologies from popular culture and speculative fiction to conceptualize their experience of changing personhood. In moving and persuasive prose, Living on the Spectrum illustrates that young people use these stories to pioneer more inclusive understandings of what makes us who we are.

Provides a detailed look at how war affects human life and health far beyond the battlefield Since 2010, a team of activists, social scientists, and physicians have monitored the lives lost as a result of the US wars in Iraq, Afghanistan, and Pakistan through an initiative called the Costs of War Project. Unlike most studies of war casualties, this research looks beyond lives lost in violence to consider those who have died as a result of illness, injuries, and malnutrition that would not have occurred had the war not taken place. Incredibly, the Cost of War Project has found that, of the more than 1,000,000 lives lost in the recent US wars, a minimum of 800,000 died not from violence, but from indirect causes. War and Health offers a critical examination of these indirect casualties, examining health outcomes on the battlefield and elsewhere—in hospitals, homes, and refugee camps—both during combat and in the years following, as communities struggle to live normal lives despite decimated social services, lack of access to medical care, ongoing illness and disability, malnutrition, loss of infrastructure, and increased substance abuse. The volume considers the effect of the war on both civilians and on US service members, in war zones—where healthcare systems have been destroyed by long-term conflict—and in the United States, where healthcare is highly developed. Ultimately, it draws much-needed attention to the far-reaching health consequences of the recent US wars, and argues that we cannot go to war—and remain at war—without understanding the catastrophic effect war has on the entire ecosystem of human health.

Winner, 2022 Donald W. Light Award for Applied Medical Sociology, given by the Medical Sociology Section of the American Sociological AssociationWinner, 2021 Robert K. Merton Book Award, given by the Science, Knowledge, and Technology Section of the American Sociological Association2021 Outstanding Academic Title, Choice Magazine Explores the social inequality of clinical drug testing and its effects on scientific resultsImagine that you volunteer for the clinical trial of an experimental drug. The only direct benefit of participating is that you will receive up to $5,175. You must spend twenty nights literally locked in a research facility. You will be told what to eat, when to eat, and when to sleep. You will share a bedroom with several strangers. Who are you, and why would you choose to take part in this kind of study? This book explores the hidden world of pharmaceutical testing on healthy volunteers. Drawing on two years of fieldwork in clinics across the country and 268 interviews with participants and staff, it illustrates how decisions to take part in such studies are often influenced by poverty and lack of employment opportunities. It shows that healthy participants are typically recruited from African American and Latino/a communities, and that they are often serial participants, who obtain a significant portion of their income from these trials. This book reveals not only how social inequality fundamentally shapes these drug trials, but it also depicts the important validity concerns inherent in this mode of testing new pharmaceuticals. These highly controlled studies bear little resemblance to real-world conditions, and everyone involved is incentivized to game the system, ultimately making new drugs appear safer than they really are. Adverse Events provides an unprecedented view of the intersection of racial inequalities with pharmaceutical testing, signaling the dangers of this research enterprise to both social justice and public health.

Honorable Mention, 2020 Stirling Prize for Best Published Work in Psychological Anthropology, given by the Society for Psychological AnthropologyHonorable Mention, New Millennium Book Award, given by the Society for Medical Anthropology How youth on the autism spectrum negotiate the contested meanings of neurodiversityAutism is a deeply contested condition. To some, it is a devastating invader, harming children and isolating them. To others, it is an asset and a distinctive aspect of an individual's identity. How do young people on the spectrum make sense of this conflict, in the context of their own developing identity? While most of the research on Asperger's and related autism conditions has been conducted with individuals or in settings in which people on the spectrum are in the minority, this book draws on two years of ethnographic work in communities that bring people with Asperger's and related conditions together. It can thus begin to explore a form of autistic culture, through attending to how those on the spectrum make sense of their conditions through shared social practices.Elizabeth Fein brings her many years of experience in both clinical psychology and psychological anthropology to analyze the connection between neuropsychological difference and culture. She argues that current medical models, which espouse a limited definition, are ill equipped to deal with the challenges of discussing autism-related conditions. Consequently, youths on the autism spectrum reach beyond medicine for their stories of difference and disorder, drawing instead on shared mythologies from popular culture and speculative fiction to conceptualize their experience of changing personhood. In moving and persuasive prose, Living on the Spectrum illustrates that young people use these stories to pioneer more inclusive understandings of what makes us who we are.