Mac Keith Press Practical Guides – serie

Disabled children who are unable to live at home are doubly needy: in addition to their disability, they are deprived of normal family life. Children who do not grow up in a stable, nurturing environment are unlikely to achieve their potential. Moreover, disabled children often have complex medical problems. Disabled children living away from home are often involved with many different professionals: although individually these professionals may provide appropriate support, the sum of their efforts rarely adds up to the actions of a ‘good’ parent. The book considers the key issues that must be addressed when disabled children move from the family home to new accommodation. It provides insights into the difficulties that these children face and looks at how the standards of care that they receive might be improved. It also makes suggestions about how professionals might work more effectively with each other and with the children's care-givers.

This book is written to assist those who have responsibility for the nutritional and gastrointestinal care of children with neurodisability. The emphasis throughout is on the importance of multidisciplinary care. It is concerned with the problems surrounding the nutritional management of children with neurological impairment who have difficulty swallowing and feeding. Written from a multidisciplinary perspective by a group of authors with considerable clinical and research experience in this area, it covers: ? The epidemiology of feeding disorders in children with cerebral palsy ? Nutritional assessment ? Evaluation of oral-motor function ? Dietetic management ? Nursing issues in the nutritional care of the disabled child ? Tube feeding ? Gastrointestinal problems and their investigation

This handbook is aimed at clinicians and others who are engaged in caring for ageing adults with developmental disabilities. It is intended to inform understanding, promote assessment, assist in care planning, and especially to improve everyday living for this needy but sadly often neglected group of vulnerable individuals. The authors base their guidance on evidence, focusing on important insights that are likely to be valuable to the clinician interested in the care of the individuals on whose behalf the book has been prepared. A brief general overview of the area is followed by a detailed consideration of dementia in the context of developmental disability, including cause, diagnosis, assessment and natural history, with case examples. The next chapters concentrate on two of the most high-profile of all the major groups of developmental disabilities, with their own unique patterns of ageing: Down syndrome and cerebral palsy. Other less common causal syndromes, and their characteristics with ageing, are then reviewed. This is followed by a detailed guide to drug treatment issues in this group. The final chapter considers wider issues of psychosocial intervention and life planning for the ageing individual with developmental disability.

This book is a practical resource for physiotherapists and occupational therapists who support people with cerebral palsy, helping them to solve the problems with movement and other impairments that so often accompany cerebral palsy, so that they can be more active and better able to participate in roles such as study, work, recreation and relationships. The first chapters provide the background to the clinical reasoning approach that informs the whole text, as well as an overview of therapeutic interventions. The subsequent chapters present clinical situations that therapists will encounter in the course of their work with individuals with cerebral palsy across the lifespan. Each chapter describes a case in detail, including the reasoning behind assessment and treatment choices, interventions and outcomes.The themes emphasized throughout the book are the use of the clinical reasoning approach of the intervention process model, the International Classification of Functioning, Disability and Health as a framework to help therapists inform patient and family decision-making, family-centred approaches in developing and implementing therapeutic strategies, and multidisciplinary team work.

Neurological disorders in children are common: families want to know what is wrong, why it happened, and whether it will happen again. Management and treatment depend on establishing the diagnosis, which usually requires investigations, but the number of possible neurological investigations is now very large indeed, and uncritical investigations may be seriously misleading and often costly. This book, based on the authors’ vast combined personal experience, gives practical guidance on how to target any specific condition with the minimum of tests. Part 1 is a brief distillation of advice on clinical history and examination, introducing the problems that beset those who deal with neurological disorders in childhood. Part 2 outlines the investigations available to solve these diagnostic problems. Part 3 takes a problem-oriented approach to the most appropriate investigations in the various clinical scenarios that may present to the practitioner: the starting point is the patient’s presentation, not the diagnosis. Throughout, vignettes of real cases help to illustrate the use of the tests in different clinical situations.The authors co-wrote the hugely popular Handbook of Neurological Investigations (“the Blue Book”) 20 years ago. This new book, while closely following the highly successful approach of the earlier title, is thoroughly up to date, with fresh material, new case vignettes, and additional investigations covered.

This highly practical book brings the examination of minor neurological dysfunction developed by Bert Touwen and his colleagues in Groningen right up to date, which is timely in view of the increasing interest in and use of this approach. The approach is a detailed and extensive neurological examination with the aim of detecting a possible neurobiological basis for learning, behavioural and motor coordination problems in a child and thus informing decision-making and management. It provides a refined, sensitive and age-appropriate technique, designed to take into account the developmental aspects of the child’s rapidly changing nervous system. This third edition of Bert Touwen’s classic handbook has been updated by Mijna Hadders-Algra to reflect contemporary clinical practice. A new chapter assesses the reliability and validity of the methodology, and the book now includes norms for comparison, as well as practical management guidelines based on current clinical practice. Entirely new photographs and diagrams illustrate the assessment techniques clearly.Videos illustrating typical and atypical performance and an electronic assessment form accompany the book. Contact admin@mackeith.co.uk for accessReadershipPaediatric neurologists, physicians working in neuropaediatrics, developmental paediatrics, child and adolescent psychiatry, and paediatric rehabilitation.

Until now there has been no book giving an overview of childhood hemiplegia for the people who are most affected by it - the children and young people themselves, and their parents, families, friends and teachers, as well as the professionals working with them on the management of their condition. This highly accessible guide provides this overview, giving the background to how and why hemiplegia happens in children, outlining the different approaches to therapy, and setting out guidance on how to support the child or young adult with hemiplegia. It is practically orientated, answering many of the questions posed by families, carers and members of the interdisciplinary team involved with the children. It will be invaluable both for parents and for medical and allied professionals. The chapters each cover one topic, moving from the causes, consequences and management of hemiplegia through the various life stages, including family life, education and growing up. Parents and professionals will dip into the handbook again and again as the child grows and his or her needs change. Readers will also find contact details for the many organizations that can provide more information or assistance. Throughout, the book is illustrated with the personal experiences of people - both parents and young people themselves - who have met the challenges of living with hemiplegia. The publication of this book is supported by HemiHelp (www.hemihelp.org.uk), a UK-based charity for people with hemiplegia and their families.

The book has been designed to provide readers with an understanding of cerebral palsy (CP) as a developmental as well as a neurological condition. It details the nature of CP, its causes and its clinical manifestations. Using clear, accessible language (supported by an extensive glossary) the authors have blended current science with metaphor both to explain the biomedical underpinnings of CP and to share their awareness that there is much that can be done to promote child and family development, enhance the capabilities of young people with CP, empower their families, and chart a course into adulthood.The authors have reviewed classification and have emphasised the wide range of functional impairments that are seen in both children and adults with cerebral palsy. In doing so they have used the ICF framework and have described the range of interventions that may be applicable to people with cerebral palsy whilst emphasising that the condition is lifelong and that promotion of adaptation is a key component to understanding its nature and effects.Essential reading for parents and carers of those with cerebral palsy, clinicians, paediatricians, neurologists, occupational therapists and physiotherapists.

This book is a practical guide to instrumented clinical gait analysis covering all aspects of routine service provision. It reinforces what is coming to be regarded as the conventional approach to clinical gait analysis. Data capture, processing and biomechanical interpretation are all described with an emphasis on ensuring high quality results. There are also chapters on how to set up and maintain clinical gait analysis services and laboratories.The book aims to describe the theoretical basis of gait analysis in conceptual terms. It then builds on this to give practical advice on how to perform the full spectrum of tasks that comprise contemporary clinical gait analysis.Readership Professionals from either a clinical or technical background working within clinical gait analysis services.The extensive sections on data capture and processing will also be invaluable for those using gait analysis for research purposes.Clinicians receiving gait analysis reports and particularly those who base clinical decisions upon gait analysis results (e.g. orthopaedic surgeons) will find it useful in understanding where the data comes from and how it can be interpreted.Physiotherapists

This handbook presents a new, practical and logical way of assessing development in preschool children that can be applied across the developmental spectrum. The reader is taught how to confirm whether development is typical and if it is not, is signposted to the likely nature and severity of impairments with a plan of action. The author uses numerous case vignettes from her 40 years’ experience to bring to life her approach with clear summary key points and helpful illustrations.  Clarifies ‘what is being tested’ and the rationale behind traditional testsIncludes tables showing the ages at which 50% and 90% of children achieve a specific domainDescribes permissible assessment adaptations for children with impairments.This title will be of value to paediatricians, paediatric neurologists, developmental psychologists, health visitors, specialist nurses, speech-, occupational- and physiotherapists, ophthalmologists, orthoptists, audiologists and audiometricians at every level of experience in the care of children from 0 to 5 years.

Have you ever Wondered how to deal with a family that repeatedly fails to keep clinic appointments?Disagreed with colleagues over a proposed course of treatment for a child?Considered ways to 'bump' a child on a waiting to speed up their assessment?These are a few of the scenarios faced by clinicians in neurodisability on a daily basis. Ethics in Child Health explores the ethical dimensions of these issues that have either been ignored or not recognised. Each chapter is built around a scenario familiar to clinicians and is discussed with respect to how ethical principles can be utilised to inform decision-making. Useful "Themes for Discussion" are provided at the end of each chapter to help professionals and students develop practical ethical thinking. Ethics in Child Health offers a set of principles that clinicians, social workers and policy-makers can utilise in their respective spheres of influence.

This book is an accessible and practical guide on all aspects of assessment of children and young people with Attention Deficit Hyperactivity Disorder (ADHD) and how they can be managed successfully. The multi-professional team of authors discusses referral, assessment and diagnosis, psychological management, pharmacological management, and co-existing conditions, as well as ADHD in the school setting. New research on girls with ADHD is also featured. Case scenarios are included that bring these topics to life. Neurodisability and community paediatricians, child and adolescent psychiatrists, specialist nurses, psychologists, and education professionals as well as parents and carers will find this an essential resource.

This book presents the latest evidence-based approaches to assessing and managing movement disorders in children. Uniquely, the authors have chosen to examine not just children with developmental coordination disorder, but also children with movement difficulties as a co-occurring secondary characteristic of another development disorder, including Attention Deficit/Hyperactivity Disorder, Autism Spectrum Disorder, Specific language Impairment and Dyslexia.Guidelines are underpinned by motor learning theory, empiricism and professional practice. The authors have taken an ecological approach to management and show how professionals and carers working together can make relatively simple changes in a child's life that aggregate to substantial support. The book is rich in case studies to demonstrate the adaptability of these guidelines and show how they may be applied to children of different ages, abilities, and environments. The final chapter is comprised of interviews of thirteen notable clinicians and academics with intervention methodologies from around the world.This book is a valuable guide for anybody working with children with movement difficulties, including clinicians, teachers and parents.

Children with complex cerebral palsy (typically, but not always, GMFCS levels IV and V) require skilled management and extensive expertise which can be overwhelming or intimidating for many clinical practitioners. This book explores management of the many medical comorbidities these children encounter, including orthopedic concerns, mobility and equipment needs, cognition and sensory impairment, difficult behaviors, seizures, respiratory complications and nutritional challenges, among many others.Summary points at the end of each chapter provide at-a-glance access to key recommendations. In addition, an Appendix provides adaptable care tools to guide clinicians in evaluation, preventive care and crisis management.Importantly, the book includes contributions from parents of children with cerebral palsy and youth with cerebral palsy, providing unique and critical wisdom for family-centred care.  Parents and families of children and youth with complex cerebral palsy will particularly appreciate the inclusion of chapters on adolescence, transition to adulthood, and growing up, growing well with cerebral palsy.

The scope of the book includes all neurological problems in infancy. In the first half, it sets out in a succinct format the principles of working with families, of clinical assessment, of the use of investigations and treatments, and of evidence-based medicine. The second, symptom-based half of the book provides detailed guidance on the practice of child neurology in infancy. The authors are distinguished experts drawn from all over Europe. The contributors have approached their chapters using an accessible, didactic style and consistent organization of material. The emphasis throughout is on clinical methods, the use of appropriate investigations and treatments, and the avoidance of unnecessary or potentially harmful interventions. For quick reference, all chapters feature boxes highlighting key messages, common errors, and when to worry. The book is designed to be carried round as a handy reference.

From time to time in the field of healthcare, an exciting new development emerges to challenge and potentially transform thinking and behaviour. The International Classification of Functioning, Disability and Health (ICF) and its framework is undoubtedly one of these transformative resources and is increasingly widely used in the field of childhood disability.This accessible handbook introduces the ICF to professionals working with children with disabilities and their families. It contains an overview of the elements of the ICF but focusses on practical applications, including how the ICF framework can be used with children, families and carers to formulate health and management goals. The Appendices contain case studies for individuals and interdisciplinary teams to work through and discuss, alongside other resources, and a copy of an ICF code set for children and youth is available to download online.Importantly, the book includes a chapter written by a parent of a child with impairments, illustrating the potential diverse applications of the ICF framework. The ICF’s relationship with patient-reported outcome measures (PROMs) and future alternatives to the current ICF framework are also examined.Clinicians, paediatricians and other healthcare providers in neurodisability, community-based health professionals, policy makers and the families and carers of children with disabilities will find this title an indispensable resource.

Individuals with childhood-onset physical and developmental disabilities often have special needs around exercise and physical activity. However, most books on this topic are written for exercise science experts who may not always be the frontline service provider. This book provides clear and evidence-based information on how to evaluate, train, and foster physical activity and fitness in individuals with childhood-onset disabilities safely across the lifespan. It is written for frontline service providers, such as clinicians and other rehabilitation professionals, as well as individuals with childhood-onset physical and developmental disabilities and their families. The authors thereby respond to specific needs and enable multiple parties to lead more physically active lives. Themes include physical fitness and activity assessment and training, safe engagement, measurement of activity levels and progress, and responses to pain. It includes disorder-specific chapters that apply the general principles of physical activity training to specific diagnoses including autism and juvenile arthritis.

This handbook provides easily accessible information on the aetiology, assessment and management of nutritional disorders in children with neurodisability. Succinct review of current evidence and guidelines is used to inform best practice. Early chapters outline the normal anatomy and physiology of feeding before considering the assessment and management of disordered feeding, and impact on nutritional status. Subsequent chapters discuss nutritional assessment and management supported by clear illustration of anthropometry techniques. Further consideration of the consequences of under and over nutrition, and impact on bone health is included. Dedicated chapters on associated gastrointestinal problems, management of drooling and dental care consider related comorbidities commonly experienced by children with neurodisability. A dedicated chapter on the use of tube feeding considers specific nutritional requirements and psychological aspects of intervention. Clinical vignettes are used to illustrate key learning points throughout.

Vision impairment is a long-term condition caused by disorders of the eye, optic nerve, and brain. Using evidence-based knowledge, theory, and research, this book provides practical guidance for practitioners who are involved in the care and management of children with long-term vision impairment and disability. The book is divided into four sections following the ICF-CY model: (1) eye disorders, vision and brain, (2) child development and learning from birth to older childhood, (3) habilitation, orientation, reading and assistive technologies and (4) social relationships and participation in everyday contexts. International team of experts present up to date vision and neuroscience research and assessment and management approaches.Multidisciplinary approaches for improving function, learning and activity in children with vision impairment.New approach to childhood vision impairment with a focus on assessment, function and participation.Covering all vision disorders and levels of vision impairment, including eye disorders, cerebral vision impairment and complex disability.A useful resource for developmental/and neurodisability paediatricians and clinicians including clinical, neuro- and educational psychologists, occupational therapists, speech and language therapists, physiotherapists; paediatric ophthalmologists and eye clinic staff; mobility/habilitation specialists, educationalists of vision impairment and others; community family support and social care workers.

Paediatric Neuropsychology within the Multidisciplinary Context is a practitioner handbook with chapters co-written by academics and clinicians. The book will offer a fresh perspective on neuropsychological theory and its influence on clinical practice. Case studies are described alongside research and theory as a clear demonstration of how neuroscience can drive formulation in paediatric neuropsychology. The book has been divided into three parts. The focus for the first two sections is on (i) sensory and then (ii) cognitive processes, with the final section on (iii) important factors that influence formulation. Chapters aim to take a process-oriented approach rather than describing a specific syndrome/condition.

Standardized Infant NeuroDevelopmental Assessment (SINDA) has been developed as a screening instrument for infants aged 6 weeks to 12 months corrected age, to assist early detection of infants at high risk of neurodevelopmental disorders. It is the first developmental instrument to allow a comprehensive (360-degree approach) including “all” dimensions of development. It has three scales: a neurological (28 items), developmental (15 items per month of age; total 113 items) and socio-emotional scale (6 items). It can be used quickly in virtually any environment and requires only simple equipment, so excellent when financial and time considerations are important.

Autism in Complex Presentations: A Guide to Assessment and DiagnosisThis book raises awareness of the importance of recognising and supporting autism with co-occurring conditions. Autism in Complex Presentations brings together international clinicians and researchers with expertise across a range of neurodevelopmental conditions to provide an evidence-based practical guide on autism assessment. It covers conditions where autism may be hard to recognise and where there are challenges around selecting, administering, and interpreting standard assessments for autism and making diagnoses. Each chapter has an easily accessible case vignette to bring the theory into practice and seeks to share the voices and experience of a young person and their family. There is focus on the challenges experienced in accessing and navigating the assessment process and how an autism diagnosis may have helped with support.This book will be relevant to clinicians including Paediatricians, Paediatric Neurologists, Child, Adolescent and Adult Psychiatrists, Clinical Psychologists, Paediatric Neuropsychologists, Speech and Language Therapists, Physiotherapists, Occupational Therapists, Specialist Nurses, Educational Psychologists, and students. It is not written specifically for people affected by autism, although they may be interested to read the book in its entirety or specific chapters.

This handbook of neurological practice in infants is designed to be of practical use to all clinicians, but particularly those in under-resourced locations. Seventy per cent of children with disabilities live in resource-poor countries and most of these children have neurological impairments. This book presents recommendations for investigations and treatments based on internationally accepted good practice that can be implemented in most settings. The book is divided into two parts: Principles and Clinical settings, with the latter taking a symptom-based approach. The contributors have approached their chapters using an accessible, didactic style and consistent organization of material. The emphasis throughout is on clinical methods, the use of appropriate investigations and treatments, and the avoidance of unnecessary or potentially harmful interventions. For quick reference, all chapters feature boxes highlighting key messages, common errors, and when to worry. The book is designed to be carried round as a handy reference.ReadershipAll those providing care for children with neurological problems, including those in resource-poor settings. This includes paediatric neurologists but also neonatologists, general paediatricians, community paediatricians, specialists in neurodisability, paediatric rehabilitation, epilepsy and paediatric neurology. The book also includes information that would be useful to specialist nurses and final-year medical students.