Genetics as Social Practice

Barbara Prainsack is Reader in Sociology in the Department of Social Science, Health and Medicine at King's College London, UK. Silke Schicktanz is Professor of Culture and Ethics of Biomedicine at the University Medical Centre Göttingen, Germany. Gabriele Werner-Felmayer is University Professor of Medical Biochemistry at the Medical University of Innsbruck, Austria.

’This is a timely and important publication that fills a gap in research and teaching. The editors have done a great job putting together a range of thoughtful analyses on the ethical, social and personal challenges that follow when genetics leaves the lab and the headlines and becomes an everyday issue for ordinary people. I will be happy to recommend this book to my students.’ Lene Koch, University of Copenhagen, Denmark ’As technology produces an unprecedented level of genetic information, this book successfully analyses the changing social and ethical implications and challenges for individuals and societies. This is a clear and essential reference for both academics and lay readers that explores the dramatic present and future impact of genetics from a social, political and scientific perspective.’ Tim Spector, King’s College London, UK

• Chapter 1 Geneticising Life: A Collective Endeavour and its Challenges, Barbara Prainsack, Silke Schicktanz, Gabriele Werner-Felmayer; Part I Creating Identities; Chapter 2 Will Personal Genomic Information Transform One’s Self?, Jennifer R. Fishman, Michelle L. McGowan; Chapter 3 The Changing Self: Philosophical Concepts of Self and Personal Identity in a Post-clinical Age of Genetics, Josef Quitterer; Chapter 4 1An earlier version of this chapter appeared in Race and the Genetic Revolution, edited by S. Krimsky and K.Sloan. New York: Columbia University Press, 2010., Troy Duster; Chapter 5 Other Stories: Artistic Explorations of Genealogy and Identity, Priska Gisler, Mo Diener, Luzia Hürzeler; Part II Sharing Knowledge; Chapter 6 1Portions of this essay were originally published in Czas Kultury (6, 2010)., Paul Vanouse; Chapter 7 Consequences of Sequences, Codes and Messages:, Gabriele Werner-Felmayer; Chapter 8 The Ethics of Patenting in Genetics: A Second Enclosure of the Commons?, Sigrid Sterckx, Julian Cockbain; Part III Part Icipating in the Social Laboratory; Chapter 9 Understanding Part Icipation: The ‘Citizen Science’ of Genetics, Barbara Prainsack; Chapter 10 LabouringMe, LabouringUs, Gisli Palsson; Chapter 11 Making Responsible Life Plans: Cultural Differences in Lay Attitudes toward Predictive Genetic Testing for Late-Onset Diseases, Aviad E. Raz, Nitzan Rimon-Zarfaty, Julia Inthorn, Silke Schicktanz; Chapter 12 Genetic Responsibility Revisited: Moral and Cultural Implications of Genetic Prediction of Alzheimer’s Disease, Silke Schicktanz, Friederike Kogel;