Research Handbook on Voluntary Assisted Dying Law, Regulation and Practice

Edited by Ben P. White, Professor of End-of-Life Law and Regulation, Australian Centre for Health Law Research, Faculty of Business and Law, Queensland University of Technology, Australia

‘Ben White’s Research Handbook offers a timely and crucial academic analysis of the rapidly increasing global regulation of voluntary assisted dying (VAD). Meticulously comparing legal and regulatory aspects internationally, it empirically investigates key ethical, legal, and practical issues, including the impact on palliative care and potential unintended consequences. An essential source to inform the growing global VAD debate.’

• ContentsPreface xix1 An introduction to voluntary assisted dying law, regulation and practice 1Ben P. WhitePART I INTERNATIONAL PERSPECTIVES ON VOLUNTARY ASSISTEDDYING LAW, REGULATION AND PRACTICE2 Euthanasia and physician-assisted suicide in the Netherlands 11Liselotte Postma, Agnes van der Heide and Bregje Onwuteaka-Philipsen3 Euthanasia in Belgium and Luxembourg 25Madeleine Archer, Kenneth Chambaere and Luc Deliens4 Assisted suicide in Switzerland 47Brigitte Tag5 Assisted dying in Germany 58Lutz Eidam and Sanela Starčević6 Assisted suicide in Austria 71Klara Doppler and Maria Kletečka-Pulker7 Euthanasia legislation in Spain: examining law, cases, and future debates 78Sergio Ramos Pozón8 Medically assisted dying in Portugal 86Sónia Fidalgo9 Assisted suicide in Italy 93Gianluca Montanari Vergallo, Nicola Di Fazio and Paola Frati10 Assisted dying in the United States 102Thaddeus Mason Pope11 Medical assistance in dying in Canada 116Eliana Close and Jocelyn Downie12 Voluntary assisted dying in Australia 130Ben P. White, Lindy Willmott, Rachel Feeney, Katherine Waller andKatrine Del Villar13 Assisted dying in New Zealand 143Jeanne Snelling and Jessica Young14 Medically assisted dying in Colombia 150Esther de Vries, Ana Isabel Gómez-Córdoba and Julieta Moreno-Molina15 Recent developments: assisted dying in Peru, Cuba and Ecuador 161Katrine Del VillarPART II FRONTIERS OF VOLUNTARY ASSISTED DYING LAW,REGULATION AND PRACTICE16 Access to assisted dying on the basis of mental disorder 175Mona Gupta17 Access to assisted dying by minors 196Luc Deliens, Kasper Raus, Tania Pastrana and Kenneth Chambaere18 Between precedent autonomy and the patient’s best interests: a reasonablepath for advance medical assistance in dying requests 210Naïma Hamrouni and Jocelyn Maclure19 Access to assisted dying for older persons on the basis of being ‘tired oflife’ 228Els Van Wijngaarden20 Medical aid in dying, decisional capacity, and supported decision making 246Megan S. Wright21 Organ and tissue donation and assisted dying 260Kim Wiebe, Fiona Slater, Vanessa Silva e Silva, Amina Silva, KenLotherington, Matthew J. Weiss and James DownarPART III REGULATION AND SOCIETAL CONTROL OF VOLUNTARYASSISTED DYING22 Holistic approaches to regulation of voluntary assisted dying 273Ben P. White23 Models of oversight systems to regulate assisted dying 292Patricia Haitink and Emily Jackson24 The role of empirical research and evaluations in regulating assisted dying 307Kenneth Chambaere, Bregje Onwuteaka-Philipsen, Agnes van derHeide and Luc Deliens25 Are there ‘slippery slopes’ in assisted dying? 324James DownarPART IV RETHINKING CONCEPTIONS OF VOLUNTARY ASSISTED DYING26 Rethinking the concept of choice in assisted dying 338Jessica Young and Els Van Wijngaarden27 Conscientious objection to voluntary assisted dying by health professionals 356Lindy Willmott, Louise Keogh, Casey M. Haining, RosalindMcDougall and Ben P. White28 Institutional refusal to permit assisted dying 371L.W. Sumner29 Is there a human right to assisted dying? 386Katrine Del Villar30 Feminist approaches to assisted dying 404Jennifer Parks31 Disability and medical aid in dying 418Brent Kious and Claire Bolt32 Assisted dying and palliative care 434James Downar, Danielle Kain, Susan MacDonald and Sandy Buchman33 Indigenous perspectives on regulating assisted dying: views from Canadaand Australia 447Constance MacIntosh34 Assisted dying considerations for racially, culturally, and linguisticallydiverse populations 463Cindy L. Cain35 Social determinants of health and assisted dying with specialconsiderations related to prisoners 475Jessica ShawPART V THE FUTURE OF VOLUNTARY ASSISTED DYING36 The future of voluntary assisted dying 492Ben P. White