Practical Handbook of Living with Dementia

Isla Parker is a pen name. Isla is a freelance editor and writer who promotes the understanding of health issues and well-being. She undertook a degree in English, and found it interesting to study how literature explores illness. This led to Isla writing a novel about anorexia for teenagers called 'Size Zero?', that is loosely based on her own experience. Isla has co-edited The Practical Handbook of Hearing Voices for PCCS Books and The Practical Handbook of Eating Difficulties (Pavilion Publishing). In her free time Isla enjoys playing the piano. She also takes part in an online writing group that has introduced her to writers from different countries. - Richard Coaten is a dancer and registered dance movement psychotherapist (RDMP) with the Association for Dance Movement Psychotherapy, where he was a Director on the Governing Council 2013-2016. He has spent the past 16 years working clinically as a DMP in an NHS older people's psychiatric ward in West Yorkshire and in day centres. He is a national and international specialist in non-verbal, movement and dance-based practices with people living with dementia. He completed a doctoral thesis on dance movement psychotherapy and dementia from Roehampton University, and delivers workshops and conference presentations in Canada, the US and Europe, supporting the training of the next generation of DMPs. He has much published work to his credit and is on the editorial board of the peer-reviewed international journal Dementia. He also sits on the Board of the Creative Dementia Arts Network. - Mark Hopfenbeck is social anthropologist specialising in health and social policy, an assistant professor at the Norwegian University of Science and Technology (NTNU), visiting fellow at London South Bank University (LSBU) and individual partner at the Collaborating Centre for Values-based Practice in Health and Social Care, St Catherine's College, Oxford University. At NTNU he teaches mindfulness and is a member of the Wellbeing and Social Sustainability research group. For the past 20 years, he has been teaching and supporting the implementation of the Open Dialogue approach in mental health care. Mark is co-editor of The Practical Handbook of Hearing Voices and The Practical Handbook of Eating Difficulties. He is currently co-investigator on a large-scale programme of research into crisis and continuing mental health care within the NHS (the ODDESSI study).

A rich recipe of ideas and thoughts on how to enable others to live with dementia. As we all should know, one size doesn’t fit all, and this book offers the holistic support for which many would be grateful. --Wendy Mitchell, author of Somebody I Used to Know and What I Wish People Knew About Dementia; A brilliant example of what can be achieved when those living with dementia, their carers and specialists collaborate… an important contribution to the literature of dementia and person-centred-care. --Rod Kersh, consultant community physician, Rotherham NHS Foundation Trust; Far too often, people living with dementia and their carers are left with nothing to tell them how to move forward. This unique, invaluable book succeeds in filling the void. --Nori Graham, emeritus consultant in the psychiatry of old age, Vice President of the Alzheimer’s Society

• Foreword - Steven Sabat, Introduction, Part 1: The voices of people with dementia and their carers, 1. The me in dementia - Keith Oliver, 2. Poetry and crafting as helpful activities for people living with dementia - Gail Gregory, 3. Using poetry to support my granny when she had dementia - Isla Parker, 4. The practical realities of caring for a loved one with dementia - Marianne Talbot, 5. The challenge of supporting an elderly parent with dementia - Gary Lockhart, 6. The difficulties and triumphs of the single carer - Peter Hemsley, Part 2: Caring for people with dementia, 7. Dementia and living at home: what can your general practitioner do for you? - Marieke Perry, 8. Providing person-centered spiritual care for people living with dementia - Kathy Fogg Berry, 9. Early onset dementia - Anthea Innes, John O'Doherty and Helen Rochford-Brennan, 10. Open Dialogue: A social network perspective in dementia care - Amy Jebreel, Rachel Butterfield and Robert Freudenthal, 11. Values-based practice in dementia care - Toby Williamson, 12. Planning now for your future: Advance care planning for people with dementia - Dylan Harris, 13. Palliative and end-of-life care in dementia - what would good care look like? - Karen Harrison Dening, 14. Palliative care options in dementia - Sascha R. Bolt, Judith M.M. Meijers and Jenny T. van der Steen, Part 3: Supporting people to live well with dementia, 15. Nutrition in dementia - Nina Herrington and Deborah Thompson, 16. I was finding it hard to eat and drink and got referred to Speech and Language Therapy! What's that all about? - Dara Brown, 17. Alternative treatments for insomnia for those with dementia and mild cognitive impairment - Lisa Austin, 18. Being in hospital when you have dementia: Providing person-centred care experiences in practice - Rachael Kelley, 19. Validation builds relationships and communication - Vicki de Klerk-Rubin, 20. Rapport-based communication: A practical approach to social inclusion and mutual wellbeing - Matt Laurie, 21. Dementia in the workplace - Louise Ritchie, Debbie Tolson and Mike Danson, 22. Does technology have a role in meeting the care and support needs of people living with dementia and their families? - John Woolham, 23. Improving independence, self-esteem and safety with better design for people with dementia - Mary Marshall, 24. How can gardening enrich the lives of people with dementia? - Sarah Swift and Margaret Brown, 25. Nature's role as a coping mechanism for people living with dementia - Wendy Brewin, 26. 'Finding safety: a monthly Rainbow Memory Cafe meeting for LGBT+ people affected by dementia - Sally Knocker and Lucy Whitman, 27. Supporting people living with dementia from Black, Asian and minority ethnic communities - David Truswell, Part 4: Creative approaches to dementia, 28. Mindfulness for people living with dementia and their carers - Cath Arakelian, Jonathan Barker, 29. Trauma-informed yoga for older people living with dementia - Josephine Norrbo and Eleonore Wesen, 30. Improvisatory movement and dance for family carers and others - Richard Coaten, 31. Frames of mind: Bringing memories to life with stop frame animation - Bo Chapman and Zoe Flynn, 32. Digital life story work with people living with dementia - Kathryn Barham, 33. Music therapy in dementia care - Ming-Hung Hsu, 34. Poetry: Telling it like it is - John Killick, 35. The magic of paint - Susan Liggett and Megan Wyatt, 36. Teleplay: Approaches to digital clowning for dementia care - Richard Talbot and Claire Dormann, 37. Dementia-friendly museums: How cultural activity benefits people with dementia, carers and communities - Rosie Barker and Louise Deakin, 38. 'Our friends can't believe all the things we're doing': The role of culture in supporting people to live well with dementia - Nicky Taylor and Gabrielle Hamilton, Afterword - Julian C. Hughes, Conclusion