Charlotte Baker – författare

While Disability Studies has become more diversified in recent years, contemporary debates still favour the Northern Hemisphere, ignoring the lived experience of disabled people in much of the global South. Few theoretical studies pay sufficient attention to the range of beliefs and attitudes towards disability in specific African contexts, despite the fact that beliefs and explanations for disability permeate daily existence in sub-Saharan African places, and can have real consequences for persons with disabilities, leading to stigmatisation, marginalisation, and even violence.This volume is a timely intervention that seeks to address some of these imbalances and biases. Through frank life writing, evocative poetry, and critical reflections on African arts and literatures, the contributors highlight the urgent need for more culturally informed understandings of disability, as a means by which to challenge existing explanations. They examine the powerful role of different creative forms, tools, and methodologies in enhancing understandings of disability in African contexts.Demonstrating the power of cultural representation in building sensitivity to the range of issues related to disability, this book is of key relevance not just to scholars and students of disability studies, African studies, and sociology, but to all who seek to advocate for social change.The volume is a key outcome of the Disability and Inclusion Africa Network. It is edited by Charlotte Baker (Lancaster University, UK), Elvis Imafidon (SOAS, University of London, UK), Kobus Moolman (University of the Western Cape, South Africa), and Emelda Ngufor Samba (University of Yaoundé 1, Cameroon).

«The authors in this inspiring volume focus on the socially transformative potential narrative has to shape understandings of albinism in Africa. Scholars and activists, they reflect on how traditional beliefs, literary fiction, radio, music, photography, film and the arts can bring about social change, and also educate publics about albinism.»(Carli Coetzee, Editor, Journal of African Cultural Studies)«Highly intriguing and skillfully nuanced, this book evaluates several methods of advocacy on behalf of people with albinism from Africa, who often face stigma and physical attacks. The result is a rich commentary on what has worked, what didn’t and why. This is recommended reading for anyone engaging in advocacy for any marginalized group in parts of Africa and elsewhere.»(Ikponwosa Ero, Former UN Independent Expert on the enjoyment of human rights by persons with albinism)The challenges currently faced by people with albinism in many African countries are increasingly becoming a focus of African writers, storytellers, artists and filmmakers across the continent. At the same time, a growing number of advocates and activists are taking account of the power of cultural representation and turning to the arts to convey important messages about albinism – and disability more broadly – to audiences locally and internationally. This volume focuses on the power of cultural representations of albinism, taking into account their real-world effects and implications. Contributions from academics and albinism advocates range across traditional beliefs, literature, radio, newsprint, the media, film and the arts for public engagement, contending that all forms of representation have an important role to play in building sensitivity to the issues related to albinism amongst national and international audiences. Contributors draw attention to the implications of different forms of cultural representation, the potential of these different forms to open up new discursive spaces for the expression of identities and the articulation or critique of particularly difficult issues, and their potential to evoke far-reaching social change.