Bokus
Malgorzata Rajtar, Katarzyna E. Król - Entanglements of Rare Diseases in the Baltic Sea Region, Inbunden

Inbunden, Engelska, 2023

Entanglements of Rare Diseases in the Baltic Sea Region

Av Malgorzata Rajtar, Katarzyna E. Król

Del i serien Anthropology of Well-Being: Individual, Community, Society

1133 kr

Beställningsvara. Skickas inom 10-15 vardagar. Fri frakt över 249 kr.

Beskrivning
Although rare diseases have captured public attention in recent decades, the lived experiences of people affected by these conditions remain on the periphery of medical anthropological inquiry. Focusing on Poland, Finland, and Sweden, and foregrounding notions of “rare” or “chronic” disease as an embedded category, this book critically analyzes entanglements between people and families with rare diseases and care practices that involve local healthcare policies, practitioners, and treatment modalities. Drawing on locally grounded case studies, Entanglements of Rare Diseases in the Baltic Sea Region constitutes a unique and important contribution to both global medicine and social science scholarship.
Produktinformation
Utforska kategorier
Mer om författaren

Malgorzata Rajtar is associate professor and head of the Rare Disease Social Research Center at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.Katarzyna E. Król is PhD student at the Graduate School for Social Research at the Institute of Philosophy and Sociology of the Polish Academy of Sciences.

Recensioner i media

This edited collection is a welcome contribution to the social science and anthropological understanding of rare disease, rare disease communities, and national policies and practices. Its focus on the Baltic Sea region is original, and through a series of case studies, each chapter chronicles a local context which has global resonance. The book attends to a wide range of social science topics, including biosociality, relationships, diagnostic work, resilience, expertise, health tourism, stigma, identity and norms of rareness, illness, and disability. It also acknowledges the often difficult experiences of patients and patient communities. In doing so, it both recognizes, and represents, the nuances and complexities of rare disease. Overall, this edited collection provides a data-rich and comprehensive overview which benefits from a broad authorship, including academics across multiple disciplines, students, practitioners, and patient advocates.

Betyg & recensioner

0 recensioner

Inga recensioner tillgängliga.