Hemvård
1 024 produkter
1 024 produkter
Häftad, Engelska, 2024
112 kr
Skickas
**** PRE-ORDER KC'S NEXT BOOK: WHO DESERVES YOUR LOVE ****Simple tools to make home care easy when life is hard. When you are neurodivergent, have undiagnosed ADHD or are struggling with your mental or physical health, keeping on top of the laundry pile and tackling dishes in the sink can feel like climbing a mountain. But it doesn’t have to be that way.Licensed therapist KC Davis has been there. Having relearnt the basics of self-care after an adult diagnosis of ADHD, she is here to revolutionise the way you look after your home and your mind. This gentle guide to staying afloat when life is tough shares practical strategies to create a functional home, make your space work for you rather than against you, and treat yourself with more compassion and kindness.KC’s philosophy: good enough is perfect. With her help, your home will feel like a sanctuary again.‘A kind and understanding book to help us all feel a little better about ourselves and how we live’ Helen Russell, bestselling author of The Year of Living Danishly
Häftad, Engelska, 2025
123 kr
Skickas
A Silent Tsunami is a unique combination of memoir and medicine – Rowan forensically examines the development of her mother’s illness and explores dementia in a frank but illuminating, lyrical and moving way.Anthea Rowan writes about her mother’s struggles of living with Dementia, while interpreting the science that surrounds this devestating illness. Grounded in personal observation, she casts an unflinching eye on the realities of living with a mother who has forgotten her daughter and a determination that her children will not face the same. There is hope here, too.As a portrayal of the relationships we share with our mothers, an examinaion of their influences on us, as well as asking questions about how illness impacts lives, A Silent Tsunami is a powerful story of family, life, love and loss.
Häftad, Svenska, 2022
189 kr
Skickas inom 5-8 vardagar
Vi möttes i mitt samtalsrum. Hon beskrev hur hon tog hand om sin demenssjuke man dag efter dag. Hur hon hjälpte honom att klä på sig på morgonen, hjälpte honom att klara dagens alla bekymmer och hjälpte honom i säng på kvällen. Sedan suckade hon och sa med eftertryck:
- Jag orkar inte en dag till! Hur ska det gå med allt? Hur ska det gå?
Jag svarade inte, och hon fortsatte:
- Men jag måste, jag bara måste klara det, det finns ju ingen annan som kan göra det.
Lars Björklund mötte i sitt arbete som sjukhuspräst inte bara sjuka människor -- alla de som finns runt den som är sjuk, eller bara gammal, är också i en utsatt situation. Under de senaste åren har han träffat ännu fler av dem vid föreläsningsdagar för anhörigvårdare.
Hur ska jag orka? är en bok skriven för alla anhörigvårdare men också för dem som möter familjer och ensamma människor i vård och omsorg. Vad gör man när ansvar för, beroende av och kärlek till en annan människa blir en alldeles för tung börda?
Ensamma klarar vi inte så mycket. Vi behöver varandra, och vi behöver hitta praktiska lösningar som kan hjälpa oss med det som blivit vårt ansvar. Men vi behöver också hitta ord och tankar för det svåra.
ur bokens förord
Ung, frisk och lycklig - då är det ingen match att lova att älska varandra i nöd och lust. Men hur orkar man den dag den andre är sjuk och hjälplös, behöver passning dygnet runt och ens egen frihet obefintlig?
Lars Bjöklund intervjuas i Svenska Dagbladet
Lars Björklund har skrivit en varm och inkännande bok om vad det är att vara anhörig och var gränserna till det möjliga går.
Corren
Ett stort antal konkreta exempel och en välskriven text förmedlar en stark närvaro från författarens sida som gör att boken berör läsaren på ett bra och närgående sätt.
Björn Nilsson Bibliotekstjänst
Inbunden, Engelska, 2025
257 kr
Skickas
“This book is a game changer for caregivers of loved ones with dementia. This book will help millions of families, like hers, like yours, like mine, like everyone’s. It’s a book for our time.” – Maria Shriver From Emma Heming Willis, wife of Bruce Willis, a deeply personal and richly compassionate supportive guide that helps caregivers care for themselves while they navigate a loved one's dementia. By sharing her personal journey as a care partner and the latest research and insights from the world’s top dementia, caregiving, and integrative experts Emma offers the guidance and wisdom caregivers everywhere so desperately need to hear, including: A diagnosis isn’t just a label, it’s a starting point. It helps you better understand your person’s behavior and respond with more clarity and compassion.Taking care of yourself is not optional; it's mandatory. It will make you a better care partner. It’s not selfish, it’s self-preserving.You don’t have a choice about being on the dementia caregiving journey. But you do have a choice in terms of how you approach it and reframe it.Caregivers are human so you aren’t always going to be patient and selfless. You have challenges and struggle with conflicting emotions and that’s okay.The day Emma Heming Willis’ husband, Bruce Willis, was diagnosed with frontotemporal dementia (FTD), all they were given was a pamphlet and told to check back in a few months.With no hope or direction, Emma walked out of that doctor’s appointment frozen with fear, confusion and a sense that her world had just fallen apart.In fact, it had. Bruce and Emma had their story written, their future mapped out. Yet all those dreams crumbled with that diagnosis, and Emma felt alone and more isolated than ever. How would she care for her husband while parenting their young daughters? With The Unexpected Journey, Emma has written the book she wishes she’d been handed on the day of Bruce’s diagnosis: a supportive guide to navigating the complicated, heartbreaking, and transformative experience that is caregiving for your loved one.Ultimately, The Unexpected Journey shows you how to care for yourself while doing one of the hardest, most heartbreaking jobs in the world. Because if you don’t take care of yourself, you are not going to be able to look after anyone else—especially your loved one with dementia. 'I know that no two caregiving journeys are the same, but we are connected by the same unchosen thread. It’s not an easy path for you, your loved one or your family. But I’m here to let you know that you are not alone, and, in time, you will find your footing, and a way forward.'
Häftad, Engelska, 2025
205 kr
Skickas
“This book is a game changer for caregivers of loved ones with dementia. This book will help millions of families, like hers, like yours, like mine, like everyone’s. It’s a book for our time.” – Maria Shriver From Emma Heming Willis, wife of Bruce Willis, a deeply personal and richly compassionate supportive guide that helps caregivers care for themselves while they navigate a loved one's dementia. By sharing her personal journey as a care partner and the latest research and insights from the world’s top dementia, caregiving, and integrative experts Emma offers the guidance and wisdom caregivers everywhere so desperately need to hear, including: A diagnosis isn’t just a label, it’s a starting point. It helps you better understand your person’s behavior and respond with more clarity and compassion.Taking care of yourself is not optional; it's mandatory. It will make you a better care partner. It’s not selfish, it’s self-preserving.You don’t have a choice about being on the dementia caregiving journey. But you do have a choice in terms of how you approach it and reframe it.Caregivers are human so you aren’t always going to be patient and selfless. You have challenges and struggle with conflicting emotions and that’s okay.The day Emma Heming Willis’ husband, Bruce Willis, was diagnosed with frontotemporal dementia (FTD), all they were given was a pamphlet and told to check back in a few months.With no hope or direction, Emma walked out of that doctor’s appointment frozen with fear, confusion and a sense that her world had just fallen apart.In fact, it had. Bruce and Emma had their story written, their future mapped out. Yet all those dreams crumbled with that diagnosis, and Emma felt alone and more isolated than ever. How would she care for her husband while parenting their young daughters? With The Unexpected Journey, Emma has written the book she wishes she’d been handed on the day of Bruce’s diagnosis: a supportive guide to navigating the complicated, heartbreaking, and transformative experience that is caregiving for your loved one.Ultimately, The Unexpected Journey shows you how to care for yourself while doing one of the hardest, most heartbreaking jobs in the world. Because if you don’t take care of yourself, you are not going to be able to look after anyone else—especially your loved one with dementia. 'I know that no two caregiving journeys are the same, but we are connected by the same unchosen thread. It’s not an easy path for you, your loved one or your family. But I’m here to let you know that you are not alone, and, in time, you will find your footing, and a way forward.'
Inbunden, Engelska, 2025
234 kr
Skickas
The story of a national treasure we won't soon forget – by the woman who knew him best. I mention you’ve been smoking. ‘He mustn’t!’ she says, alarmed. ‘There’s so much oxygen in your house he’d explode.’ There is a funny side to this — a cartoonish end: Johnnie Walker DJ Explodes! Just try not to take the house with you. In Johnnie Walker – Both Sides Now, his devoted wife Tiggy shares the final chapter of their life together: the slow, painful goodbye to the man she adored. She reflects on the soaring highs of Johnnie’s legendary Radio 2 career, as they navigate the heartbreak, frustration, and strange intimacy of anticipatory grief.This is an honest, deeply personal portrait of love and loss — a raw, life-affirming tribute to a remarkable life well-lived. With wit and unflinching clarity, Tiggy lays bare the emotional toll of caring for someone at the end of life, and the impossible task of letting go while still holding on.Not just for those who loved Johnnie Walker — this is for anyone who’s known the tangled, messy grace of caring, grieving and loving, all the way to the final breath.
- Nyhet
Häftad, Engelska, 2026
132 kr
Skickas
The story of a national treasure we won't soon forget – by the woman who knew him best. I mention you’ve been smoking. ‘He mustn’t!’ she says, alarmed. ‘There’s so much oxygen in your house he’d explode.’ There is a funny side to this — a cartoonish end: Johnnie Walker DJ Explodes! Just try not to take the house with you. In Johnnie Walker – Both Sides Now, his devoted wife Tiggy shares the final chapter of their life together: the slow, painful goodbye to the man she adored. She reflects on the soaring highs of Johnnie’s legendary Radio 2 career, as they navigate the heartbreak, frustration, and strange intimacy of anticipatory grief.This is an honest, deeply personal portrait of love and loss — a raw, life-affirming tribute to a remarkable life well-lived. With wit and unflinching clarity, Tiggy lays bare the emotional toll of caring for someone at the end of life, and the impossible task of letting go while still holding on.Not just for those who loved Johnnie Walker — this is for anyone who’s known the tangled, messy grace of caring, grieving and loving, all the way to the final breath.
Häftad, Engelska, 2011
236 kr
Skickas inom 3-6 vardagar
Häftad, Engelska, 2009
186 kr
Skickas
The compassionate and practical guide to managing dementia and Alzheimer's, from a clinical psychologist and Sunday Times bestselling author.Dementia is a little understood illness but, while there is currently no cure, much can be done to support wellbeing and maintain quality of life for people living with this condition.In Contented Dementia, clinical psychologist and bestselling author, Oliver James, outlines a groundbreaking and practical method for managing dementia that will allow both sufferer and carer to maintain the highest possible quality of life, throughout every stage of the illness.The SPECAL method (Specialised Early Care for Alzheimer’s) was developed to help carers, families and professionals respond to memory loss and behavioural changes with understanding, confidence, and a personalised approach.The method is based on a simple but powerful principle: although recent memory fades, emotional memory and long-term memories often remain strong. By working with, rather than against, the reality experienced by the person with dementia, SPECAL helps reduce distress, improve communication and create a calmer, more contented daily life.Drawing on real-life examples and user-friendly tried-and-tested methods, Contented Dementia provides essential information and guidance for families, caregivers and healthcare professionals seeking a more positive approach to dementia care.Praise for Contented Dementia:‘A revolutionary new way of treating dementia [that] brings amazing benefits for patients and carers alike’ Guardian‘An indispensable handbook for anyone coping with the effects of dementia and who wants to keep a sufferer as happy as is humanly possible’ Daily Express‘Explains a revolutionary way to care for dementia patients . . . tender techniques that can ease absent minds’ Telegraph‘Anyone who wants help in caring for the condition will find this excellent work a revelation’ Mail on Sunday‘Shows how to minimize distress and manage dementia…I expected this book to be depressing; it is exactly the opposite.’ The Independent
Häftad, Engelska, 2015
668 kr
Skickas inom 10-15 vardagar
Family Caregiving in the New Normal discusses how the drastic economic changes that have occurred over the past few years have precipitated a new conversation on how family care for older adults will evolve in the future.
This text summarizes the challenges and potential solutions scientists, policy makers, and clinical providers must address as they grapple with these changes, with a primary focus given to the elements that may impact how family caregiving is organized and addressed in subsequent decades, including sociodemographic trends like divorce, increased participation of women in the workforce, geographic mobility, fewer children in post-baby boom families, chronic illness trends, economic stressors, and the current policy environment.
A section on the support of caregivers includes technology-based solutions that examine existing models, personal health records, and mobile applications, big data issues, decision-making support, person-centered approaches, crowd-sourced caregiving such as blogs and personal websites that have galvanized caregivers, and new methods to combine paid and unpaid forms of care.
Provides a concise "roadmap" of the demographic, economic, health trends, and policy challenges facing family caregivers Presents potential solutions to caregiving so that scientists, policymakers, and clinical providers can best meet the needs of families and communities in the upcoming decades Includes in-depth, diverse stories of caregivers of persons with different diseases who share perspectives Covers person-centered care approaches to family caregiving that summarize effective community-based services of psychosocial intervention models Examines how existing efficacious models can more effectively reach and serve individual families
Häftad, Engelska, 2021
422 kr
Skickas inom 5-8 vardagar
Language exercises a powerful impact on medical care as the words that physicians use with patients have the power to heal or harm. The practice of medicine is shaped by the potent metaphors that are prevalent in clinical care, especially military metaphors and the words of war that bring with them unfortunate consequences for patients and physicians alike. Physicians who fight disease turn the patient into a passive battlefield. Patients are encouraged to remain stoic, blamed for "failing" chemotherapy and sadly remembered in heroic obituaries of lost battles. The search for disease as enemy shifts the doctor's gaze to the computer and imaging technologies that render the patient transparent, unseen and unheard. Modern treatments save lives but patients can be the victims of collateral damage and friendly fire. In The Language of Medicine, Abraham Fuks, physician, medical educator, and former Dean of Medicine at McGill University, shows us how words are potent drugs that must be tailored to the individual patient and applied in carefully chosen and measured doses to offer benefits and avoid toxicity. The book shines a light on our culture that deprecates the skill of listening that is, paradoxically, the attribute that patients most desire of their doctors. Societal metronomes beat rapidly and compress clinic visits into stroboscopic encounters that leave patients puzzled, fearful and uncertain.Building on research about physicians in practice, the experiences of patients, stories of medical students as well as the history of medicine, Dr. Fuks promotes an ideal of clinical practice that is achieved by humble physicians who provide time and space for listening, select words with care, and choose metaphors that engender healing.
Inbunden, Engelska, 2010
422 kr
Skickas inom 3-6 vardagar
Approximately 2.5 million people in the United States--one percent of the population--have an intellectual disability (previously referred to as mental retardation). These conditions range from genetic disorders such as Down syndrome to disabilities caused by infectious diseases and brain injury. Intellectual Disability: A Guide for Families and Professionals, by one of the country's foremost authorities on intellectual disability, is a comprehensive resource that will be of importance to anyone with a personal connection to a child or adult with a neurodevelopmental disorder. Emphasizing the humanity of persons with intellectual and related developmental disabilities, psychiatrist and pediatrician James Harris provides essential information on assessment and diagnosis of intellectual disability, treatments for specific disorders, and ways to take advantage of the wide array of services available today. The focus throughout is on the development of the person, the positive supports necessary for self-determination, and, to the extent possible, independent decision making. Harris also surveys historical attitudes toward intellectual disability, the medical community's current understanding of its causes and frequency, and the associated physical, behavioral, and psychiatric conditions (such as seizure disorder, depression, and autism) that often accompany particular types of intellectual disability. The book addresses legal, medical, mental health, and research-related issues as well as matters of spirituality, highlighting the ways in which individuals with intellectual disability can meaningfully participate in the spiritual lives of their families and their communities. Each chapter ends with a series of key points to remember, and the book concludes with a list of additional resources of further interest.Intellectual Disability is a must-read for parents and families of those with neurodevelopmental disorders, providing guidance and essential information to help their family members effectively, and to make a significant, positive difference in their lives now and in the future.
Inbunden, Engelska, 2007
678 kr
Skickas inom 5-8 vardagar
In Dialysis Without Fear, psychiatrist and dialysis patient Dr. Daniel Offer joins with his wife, Marjorie Kaiz Offer, and daughter, Susan Offer Szafir, to reveal how life can be lived, and lived well, on dialysis. Drawing on his long medical career and more than seven years of personal experience with dialysis, Dr. Offer dispels many misconceptions surrounding this treatment, explaining how you can adapt to the new diet, travel, work and continue to partake in life's joys and celebrations. But the fears and hardships can be quite real, and Dr. Offer brings his years as a psychiatrist to bear as he provides practical advice on how patients can overcome them. Walking through each step of dialysis, he explains different types of treatment, examines the pros and cons of a transplant, and discusses side effects. Since dialysis affects the entire family, Dr. Offer and his co-authors also provide realistic insights into how relatives can cope and thrive together, sharing the humour, courage, and triumphs of real families who have successfully faced the challenges of dialysis. The result is an inspiring, practical guide that will help patients and their families learn to overcome the difficulties of dialysis, live without fear, and enjoy every day.
Häftad, Engelska, 2007
420 kr
Skickas inom 5-8 vardagar
In Dialysis Without Fear, psychiatrist and dialysis patient Dr. Daniel Offer joins with his wife, Marjorie Kaiz Offer, and daughter, Susan Offer Szafir, to reveal how life can be lived, and lived well, on dialysis. Drawing on his long medical career and more than seven years of personal experience with dialysis, Dr. Offer dispels many misconceptions surrounding this treatment, explaining how you can adapt to the new diet, travel, work and continue to partake in life's joys and celebrations. But the fears and hardships can be quite real, and Dr. Offer brings his years as a psychiatrist to bear as he provides practical advice on how patients can overcome them. Walking through each step of dialysis, he explains different types of treatment, examines the pros and cons of a transplant, and discusses side effects. Since dialysis affects the entire family, Dr. Offer and his co-authors also provide realistic insights into how relatives can cope and thrive together, sharing the humour, courage, and triumphs of real families who have successfully faced the challenges of dialysis. The result is an inspiring, practical guide that will help patients and their families learn to overcome the difficulties of dialysis, live without fear, and enjoy every day.
Häftad, Engelska, 2022
550 kr
Skickas inom 5-8 vardagar
Loss and Grief: Personal Stories of Doctors and Other Healthcare Professionals is a unique collection of personal narratives that chronicle the journeys of doctors and other healthcare professionals who have been personally impacted by life-altering losses. Edited by internationally recognized practitioners of supportive care medicine and grief counseling, these are unflinching, first-person narratives of authors walking in their own shoes. The narratives reveal losses of cherished loved ones, integrity, dreams, naïve views of colleagues, and the lack of institutional support for these inevitable experiences. Although the narrators are well-established leaders in their fields, serious loss brought each back to the exposed core of their most basic selves. They learned that the professional veneer was too thin to be instructive or protective. Readers might resonate with their own painful experiences and memories, and others might wonder how they will imagine their own future when these inevitable aspects of being human-loss and grief-strike them, too. In Loss and Grief, it is our hope that such openly shared feelings of isolation and suffering will humanize the loss experience, ignite prospective discussions, and illuminate opportunities for education, research and interventions to prepare us for multiple loss experiences endemic to life.
Häftad, Engelska, 2023
850 kr
Skickas inom 5-8 vardagar
Crossing Over provides a unique view of patients, families, and their caregivers in the face of incurable illness. Twenty richly-detailed narratives bring vividly to life the experiences of dying and bereavement, weaving together emotions, physical symptoms, spiritual concerns, and the stresses of family life, as well as the professional and personal challenges of providing hospice and palliative care. Drawing on a variety of qualitative research methods, including participant-observation, interviews, and journal keeping, the narratives depict the sights, sounds, tastes, and smells of daily life in patients' homes and in the palliative care unit. Crossing Over moves far beyond conventional case reports in medicine, which typically concentrate narrowly on symptoms and treatments, and beyond clichés about "dying with dignity." It provides intimate views of the anger and fear, tenderness and reconciliation, jealousy and love, unexpected courage and unshakable faith, social support and "falling through the cracks," which are all part of facing death in North American society. It provides an extraordinary portrait of the processes of giving and receiving hospice and palliative care in the real world, as opposed to idealized versions in many textbooks. This edition of Crossing Over has been thoroughly revised and updated to reflect changes in hospice and palliative care and in North American society since the first edition in 2000. Chief among these are the expansion of hospice and palliative care as a field, the ravages of the COVID-19 pandemic, the wider availability of medical aid in dying, and a heightened awareness of how structural racism, classism, and other forms of discrimination shape individuals' and families' experiences right up to the close of life.
Inbunden, Engelska, 2023
326 kr
Skickas inom 5-8 vardagar
FDA's approval of aducanumab has radically changed the world of Alzheimer's disease and you're going to need guidance regarding whether they should take it or not. This book conveys all the insight.As you age, you may find yourself worrying about your memory. Where did I put those car keys? What time was my appointment? What was her name again? With more than 41 million Americans over the age of 65 in the United States, the question becomes how much (or, perhaps, what type) of memory loss is to be expected as one gets older and what should trigger a visit to the doctor.Seven Steps to Managing Your Aging Memory addresses these key concerns and more, such as:· What are the signs that suggest your memory problems are more than just part of normal aging?· Is it normal to have concerns about your memory?· What are the markers of mild cognitive impairment, dementia, Alzheimer's, and other brain diseases?· How should you talk about your memory concerns to your doctor?· What should your doctor do to evaluate your memory?· Which healthcare professional(s) should you see?· What medicines, alternative therapies, diets, and exercises actually work to improve your memory?· Can crossword puzzles, computer brain-training games, memory aids, and strategies help strengthen your memory?· What other resources are available when dealing with memory loss?Seven Steps to Managing Your Aging Memory is written in an easy-to-read yet comprehensive style, featuring clinical vignettes and character-based stories that provide real-life examples of how to successfully manage memory loss.
Häftad, Engelska, 2024
502 kr
Skickas inom 5-8 vardagar
Caregiving is a physically, emotionally, socially, existentially, and financially demanding role that touches most people at some point in their lives. Without support, caregivers are at risk for their own physical and medical problems. Despite being a source of suffering, it at the same time presents an opportunity to connect to meaning and purpose. The authors of this book developed Meaning-Centered Psychotherapy for Cancer Caregivers (MCP-C), the first targeted therapy to comprehensively address existential distress and suffering in caregivers. Across seven sessions and through a series of didactic and experiential exercises, caregivers are guided to explore various sources of meaning in life that can become resources for them, especially when the challenges of caregiving are great. In this manual, the reader will find an overview and background on MCP-C, and in-depth descriptions of each of the seven sessions, with sample therapist scripts and handouts for caregivers engaged in MCP-C. It also includes a case example to bring the material to life. The goal of MCP-C is to provide caregivers with the tools needed to live life as fully as possible, despite the many challenges they face. Research on MCP-C with caregivers of patients with various sites and stages of cancer and across the caregiving trajectory supports the underlying mission of MCP-C: suffering is unavoidable but meaning and purpose is always possible.
Häftad, Engelska, 2023
206 kr
Skickas inom 5-8 vardagar
Feel it, stay with it, share it, and let it go. Take your life back from stress and trauma using self-help versions of proven treatments.Up to 90% of adults in the US will experience one or more traumatic events in their lifetimes, including interpersonal violence, traffic collisions, and sexual assault. Traumatic events and other difficult experiences (such as miscarriage, job loss, and divorce) can have a long-lasting impact on mental health and well-being. While most who suffer a trauma naturally recover over time, for others difficulties continue, and may lead to full-blown depression, posttraumatic stress disorder (PTSD), substance use, anxiety disorders, and other problems that interfere with healthy daily functioning. Making Meaning of Difficult Experiences is a self-guided mental health resource for people who have had potentially traumatic experiences and who wish to work through them independently, outside of a formal therapeutic setting. Based on psychological treatments with strong scientific support, this book introduces readers to several useful tools that will help them to emotionally process difficult experiences, with the goal of moving on from the event and building future resilience. Many years of research (much of which has been conducted by the authors of this volume) have shown that people who try to avoid memories and reminders of difficult experiences are more likely to develop PTSD, depression, and other problems. Conversely, those who work to process the memory gradually regain a general sense of wellbeing, experiencing fewer mental health issues over time. This program is unique in that it is intended to be wholly self-directed. Readers can learn about and then immediately practice the strategies described, moving through and then past difficult experiences--whether they happened last week or years ago. The program takes the reader step-by-step through four skill sets to facilitate emotional processing of difficult experiences: Memory Exposure and Processing, Behavioral Activation, Social Connection, and Self-Care. Each set begins with a short description, followed by a self-assessment. Readers use this self-evaluation to determine what is working or not working for them, enabling them to focus more on certain skills, or to complete the full program based on their needs.
Häftad, Engelska, 2025
267 kr
Skickas inom 5-8 vardagar
Multiple sclerosis (MS) causes a myriad of physical, cognitive, and emotional symptoms that impact function and quality of life for those with the disease and those providing care. Navigating Life with Multiple Sclerosis is a practical guide for meeting the challenges of this life-long, unpredictable disease.This insightful guide offers a detailed description of the essential components of comprehensive MS care, from disease and symptom management, rehabilitation to enhance function, safety and independence, social and emotional support, and attention to overall health and wellness for both patients and caregivers. Each chapter offers solutions and guidance based upon the authors' interdisciplinary perspectives and years of clinical and research experience. The person with MS is the center of the care team and this book provides guidance for communicating effectively with healthcare providers, participating comfortably in shared decision making, and advocating confidently for personal healthcare needs and priorities.
Häftad, Engelska, 2026
213 kr
Kommande
Navigating Life with Amyotrophic Lateral Sclerosis is a compassionate and practical guide for individuals living with ALS, as well as their families and caregivers.Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal cord. Affecting approximately 5,600 Americans every year, receiving the diagnosis of ALS can be devastating. Now in its second edition, this essential resource offers clear, accessible answers to the many questions that arise from diagnosis through the progression of the disease. Written by a neurologist with decades of clinical experience and a caregiver who supported a parent with ALS, the book combines medical expertise with personal insights. It covers the full spectrum of ALS care-from understanding symptoms and the diagnostic process to navigating daily challenges, exploring assistive technologies, and making informed decisions about respiratory support and end-of-life care. New sections also explain the latest research, including the role of genetic mutations and other genetic factors, and the development of new treatments, in language that is easy to understand. Organized in a user-friendly question-and-answer format, the book includes patient stories, caregiver perspectives, and expert commentary.With a glossary, helpful resources, and insightful patient vignettes, Navigating Life with Amyotrophic Lateral Sclerosis empowers patients and their support networks to make informed choices and maintain quality of life throughout the ALS journey.
Häftad, Engelska, 2015
298 kr
Skickas inom 5-8 vardagar
Chronic pain is a significant health problem for many children and adolescents, with studies suggesting that as many as 15% to 40% of children suffer from chronic pain. Chronic pain is puzzling for parents to understand because there is often not a clear diagnosis or treatment plan. Unfortunately, many families cannot get the help they need because they live too far from children's hospitals with pediatric pain clinics, where most healthcare providers in this specialized area are based. Managing Your Child's Chronic Pain is a resource for parents to learn how to help their children and families cope with persisting pain using cognitive-behavioral therapy (CBT), an effective intervention to treat children with chronic pain. With the easy-to-use psychological treatment strategies in this book, parents will have practical instructions in CBT for pain management. Authors Tonya M. Palermo and Emily F. Law, pediatric psychologists in the field of child and adolescent chronic pain, discuss the scientific foundation for chronic pain, information about the effectiveness of treatments, and several personal stories of parents and their children with chronic pain. They explain instructions for several different interventions including deep breathing, relaxation strategies, and sleep interventions to allow parents to support these skills with their children. The book concludes with guidance on how to prevent relapse, maintain improvements, and prevent future problems with pain and disability. The first book of its kind, Managing Your Child's Chronic Pain will empower parents to take a hands-on approach to relieving their child's pain.
Inbunden, Engelska, 2006
1 222 kr
Skickas inom 5-8 vardagar
Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. The Caregiver's Tale offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals. Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents. Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo Oe, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.
Häftad, Engelska, 2006
598 kr
Skickas inom 3-6 vardagar
Ann Burack-Weiss explores a rich variety of published memoirs by authors who cared for ill or disabled family members. Contrary to the common belief that caregiving is nothing more than a stressful situation to be endured, memoirs describe a life transforming experience-self-discovery, a reordering of one's priorities, and a changed view of the world. The Caregiver's Tale offers insight and comfort to individuals caring for a loved one and is a valuable resource for all health care professionals. Identifying common themes, Burack-Weiss describes how the illness career and social meaning of cancer, dementia, HIV/AIDS, mental illness, and chemical dependence affect the caregiving experience. She applies the same method to an examination of family roles: parents caring for ailing children, couples and siblings caring for one another, and adult children caring for aging parents. Jamaica Kincaid, Sue Miller, Paul Monette, Kenzaburo Oe, and Philip Roth are among the many authors who share their caregiving stories. Burack-Weiss provides an annotated bibliography of the more than one hundred memoirs and an accompanying chart to help readers locate those of greatest interest to them.
Inbunden, Engelska, 2024
207 kr
Skickas
WINNER OF THE ROYAL SOCIETY OF LITERATURE CHRISTOPHER BLAND PRIZEA BBC RADIO 4 BOOK OF THE WEEK'A riveting book that treats elderly, infirm and irritable people as the lively and extraordinary human beings they really are. Kathryn Faulke is a shining example to us all ... Every Kind of People is truly heart-warming and will be in pride of place on my bookshelf of very special books' JACQUELINE WILSONA luminous, uplifting and deeply moving memoir by a care worker, told through her funny, heartbreaking, sometimes frustrating, and always eye-opening encounters with the often overlooked and marginalised people she cares for.Kate never expected to become a home care worker. But when she left her senior role in the NHS, burnt-out and disheartened, she thought caring for people in their own homes would be a simpler job. Despite being determined not to become too involved with her 'customers', she soon found herself developing firm friendships, forging deep connections and bearing witness to the extraordinary drama to be found in ordinary lives.With energy, compassion and clarity, her memoir gives an astonishing insight into this unsung - and often maligned - profession, and into the hidden lives of the housebound and infirm. From Beryl who screams like a banshee whenever Kate tries to wash her, but collapses in giggles when her toes are tickled, to bawdy Mr Radbert who 'promised to give me his car when he can remember where he left it'.Every Kind of People is clear-eyed about the challenges facing the NHS and the care system. But it is above all a celebration of humanity and of the life-changing impact of caring, on those who offer it and those who receive it.'Being as close as this to someone is a uniquely precious place to be. It is a place where secrets are revealed and fears are shared and outrageous jokes are made that could not be told to anyone else. It is a coal face of human experience'---'The work of a natural storyteller ... All kinds of brilliant' JON McGREGOR‘I am in love with Kate's storytelling, her ability to see the person and her fabulous, dry humour. This is a book about caring, and it's also a book about being in love with humanity’ KATHRYN MANNIX'An extraordinary account of what it is to care for others, both beautiful and painful to read. This book is a compassionate invitation to get up close to the human condition and those who attend to it' DR GWEN ADSHEAD, author of The Devil You Know'An extraordinary and important book that will make you laugh, cry, admire and despair in equal measure... A wonderful achievement' DAVID HASLAM
Häftad, Engelska, 2025
132 kr
Skickas
WINNER OF THE ROYAL SOCIETY OF LITERATURE CHRISTOPHER BLAND PRIZEA BBC RADIO 4 BOOK OF THE WEEK'Truly heart-warming ... It's become my comfort book' JACQUELINE WILSON'Told from inside one of the UK's most overlooked professions, this home careworker's memoir is warm, raw, and unflinchingly honest. The sad moments are balanced with the funny, heartwarming ones' i paperA luminous, uplifting and deeply moving memoir by a care worker, told through her funny, heartbreaking, sometimes frustrating, and always eye-opening encounters with the often overlooked and marginalised people she cares for.Kate never expected to become a home care worker. But when she left her senior role in the NHS, burnt-out and disheartened, she thought caring for people in their own homes would be a simpler job. Despite being determined not to become too involved with her 'customers', she soon found herself developing firm friendships, forging deep connections and bearing witness to the extraordinary drama to be found in ordinary lives.With energy, compassion and clarity, her memoir gives an astonishing insight into this unsung - and often maligned - profession, and into the hidden lives of the housebound and infirm. From Beryl who screams like a banshee whenever Kate tries to wash her, but collapses in giggles when her toes are tickled, to bawdy Mr Radbert who 'promised to give me his car when he can remember where he left it'.Every Kind of People is clear-eyed about the challenges facing the NHS and the care system. But it is above all a celebration of humanity and of the life-changing impact of caring, on those who offer it and those who receive it.'Being as close as this to someone is a uniquely precious place to be. It is a place where secrets are revealed and fears are shared and outrageous jokes are made that could not be told to anyone else. It is a coal face of human experience'---'The work of a natural storyteller ... All kinds of brilliant' JON McGREGOR‘I am in love with Kate's storytelling, her ability to see the person and her fabulous, dry humour. This is a book about caring, and it's also a book about being in love with humanity’ KATHRYN MANNIX'An extraordinary account of what it is to care for others, both beautiful and painful to read. This book is a compassionate invitation to get up close to the human condition and those who attend to it' DR GWEN ADSHEAD, author of The Devil You Know'An extraordinary and important book that will make you laugh, cry, admire and despair in equal measure... A wonderful achievement' DAVID HASLAM
Inbunden, Engelska, 2025
273 kr
Skickas inom 5-8 vardagar
Writer and founder of national online support group Caregiver Collective and herself a caregiver Jennifer N. Levin offers a comprehensive look at our current culture of care--with an emphasis on Millennial caregivers--providing a roadmap to solutions and an urgent call for policy change.More than 10 million Millennials are caring for aging parents before they've been able to fully launch their own careers and consider starting their own families, and that's not including the incalculable numbers of people affected by long COVID. Yet no one is naming this problem, talking about how it feels, or offering resources to ease the pressure of Millennial caregiver burnout. Jennifer N. Levin was 32 when her father was diagnosed with a rare degenerative illness. As she struggled with few resources and little support, she created Caregiver Collective, a national online support group for Millennial caregivers. Now Levin brings the wisdom from her own experience and that of her support group to Why Us?, a comprehensive look at this generation's culture of care. Filled with the voices of caregivers, expert commentary and research, and a roadmap to the solutions that can begin helping people now as well as build the policies of the future, Why Us? addresses:- The urgency of caregiving: With earlier (and better) detection of disease, along with a rise in chronic illness, the average age of a care recipient is younger than before--as is the average caregiver age.- The financial costs: Millennials spend a higher percentage of their income on caregiving and carry unprecedented student loan debt, adding to fiscally devastating out-of-pocket costs for care.- Ambiguous loss for caregivers: Caregiving can dictate caregivers' lifestyle choices; Millennial caregivers may grieve the lives they 'thought' they'd have.- The impact of COVID and long COVID: We're in a period of fluctuation with flex and remote work, which makes work and caregiving more compatible. How can we make sure that working caregivers' needs are honored?- Strategies for getting help on the individual level and in relation to policy.We, as a culture and society, talk about caregiving broadly-it's something many of us may think, "not us" or "we'll figure that out later." But caregiving is an increasingly urgent crisis. Why Us? brings this crisis to the fore, illuminates the real stories and people who are most affected, underscores the need for shifts in policy and giving support where it is most needed, and sounds a clarion call for change.
Inbunden, Engelska, 2018
333 kr
Skickas inom 5-8 vardagar
Häftad, Engelska, 2018
125 kr
Skickas inom 5-8 vardagar
Häftad, Engelska, 2020
751 kr
Skickas inom 10-15 vardagar
This book presents the methodology, findings and implications of a large-scale corpus-based study of the metaphors used to talk about cancer and the end of life (including care at the end of life) in the UK. It focuses on metaphor as a central linguistic and cognitive tool that is frequently used to talk and think about sensitive and subjective experiences, such as illness, emotions, death, and dying, and that can both help and hinder communication and well-being, depending on how it is used. The book centers on a combination of qualitative analyses and innovative corpus linguistic methods. This methodological assemblage was applied to the systematic study of the metaphors used in a 1.5-million-word corpus. The corpus consists of interviews with, and online forum posts written by, members of three stakeholder groups, namely: patients diagnosed with advanced cancer; unpaid carers looking after a relative with a diagnosis of advanced cancer; and healthcare professionals. The book presents a range of qualitative and quantitative findings that have implications for: metaphor theory and analysis; corpus linguistic and computational approaches to metaphor; and training and practice in cancer care and hospice, palliative and end-of-life care.